Petition – Pay Carers an Allowance Equivalent to a Fulltime Job at the National Living Wage – Please sign then Rt/Share/Like

PetitionPay Carers an allowance equivalent to a fulltime job at the National Living wage

Paying unpaid carers would safeguard those requiring care making it a financially viable option for friends and family to look after those they love, Reducing pressure on 999 services and the NHS. Saving vast amounts of money per person. The carer who provides continuity in care is often forgotten.

Primary carers currently receive £1.85 an hour which is £64.60 a week, £3359 a year.

There are over 6,000,000 carers in the UK and 1.25 Million people provide unpaid care for more than 50 hours per week (NHS survey of carers 2009/2010; Census 2001, Office for National Statistics) Carers for people with dementia alone save the UK over £8 Billion per annum. 72% of carers are worse off financially as a result of becoming a carer and struggle to make ends meet (Carers UK 2008)

This is a national disgrace!

 

Please sign this petition

Part 7 -The RADAR Alzheimer’s Research Study.

Last Monday I was back for another research appointment at the Royal Hallamshire Hospital in Sheffield.

As usual, they had booked a taxi to take me from my home to the Hospital and on arrival it wasn’t long before I was greeted by Alice the research Nurse.

We went through to the room and Alice explained that is was to be a quick appointment this time.

We went through the usual research questionnaire and the sitting and standing blood pressure and Alice gave me the next lot of tablets to take..

Then Alice asked me to wait in the waiting room for my Neurologist to come to see me.

Unbeknown to me, Alice was concerned that I wasn’t myself and had called my Neurologist to come and see me, whilst I sat in the waiting room.

The Neurologist came and explained why she was there and we talked for a while about what had been happening to me since before Christmas.

We talked about the increasing challenges and the fatigue which has plagued me for sometime but she was happy for me to continue in the research study.

With that, we arranged the next appointment and a taxi was booked to take me home.

Another simple appointment, with the addition of an extra opportunity to talk to my Neurologist.



 

Links for the 3 Nations Dementia Working Group Twitter Chat 13 February 2019

These are just a few articles about The Mental Capacity (Amendment) Bill for our twitter chat.

The Mental Capacity Amendment Bill

Special Report: Mental Capacity (Amendment) Bill

Bill on mental capacity and liberty deprivation ‘will take disability rights backwards’

Mental Health Act review ‘falls significantly short on human rights’

Mental capacity law reform: threatens human rights

Ministers’ ‘shocking’ failure to consult DPOs on bill shows UN convention ignorance

The government is quietly shifting power away from patients to hospitals and care homes

Over 100 care bodies urge ministers to halt deprivation of liberty bill because of ‘threat to human rights’

The current version of the Mental Capacity (Amendment) Bill will strip essential legal protections from the most vulnerable – Mind

Government amendment removes users’ rights to information before deprivation of liberty authorisation in DoLS replacement bill

Mental capacity changes give care homes too much power, critics say

Vulnerable dementia patients could be locked up for three years without review under ‘rushed’ government reform

Government deprivation of liberty ‘definition’ added to DoLS replacement bill but criticised as contrary to case law

DPOs call for support in battle to make ministers think again over attack on rights



 

Sheffield UK, Young Onset Dementia Support Group Today

Earlier in the year, I contacted Young Dementia UK about the lack of support for people living with Dementia under the age of 65 and their care partners and families in Sheffield.

Then I was on the interview panel that appointed a  Young dementia UK co-ordinator for Sheffield.

It is so important for people living with Dementia to be involved in developing new services.

I am pleased to tell you that YoungDementia UK is launching a new monthly group starting on the 16 January 2019 for people living with Young Onset Dementia who live in the Sheffield area.

It will take place every month at

Graves Health and Sports Centre
Bochum Parkway
Sheffield
S8 8JR

The 13th February group tomorrow will be at 1.00-3.00 pm’

It is chance to meet new people, try new activities and access information about young onset dementia.

Download a poster about the group here.

For more information please contact our Group Coordinator, Natasha Wilson at natashawilson@youngdementiauk.org


Additional Funding

As Sheffield is our 4th largest city and it is quite a way from the north of the city to Graves Health and Sports Centre I am seeking additional funding for a second group in the north of the city.

Any kind soul reading this that may be able to help could contact Natasha for more information.


Note for Professionals and Organisations

I would hope that people receiving a diagnosis of Young Onset Dementia, would be referred by their Neurologist to the group, at the point of Diagnosis where appropriate, via Natasha Wilson.

Associated Health Professionals who identify someone who would benefit from being included should also refer people along with other medical professionals the council and other organisations.

Equality of treatment and services regardless of condition is a right set out under the The United Nations Convention on the Rights of Persons with Disabilities (CRPD)

For more information please contact our Group Coordinator, Natasha Wilson at natashawilson@youngdementiauk.org



 

Sheffield UK, Young Onset Dementia Support Group Tomorrow

Earlier in the year, I contacted Young Dementia UK about the lack of support for people living with Dementia under the age of 65 and their care partners and families in Sheffield.

Then I was on the interview panel that appointed a  Young dementia UK co-ordinator for Sheffield.

It is so important for people living with Dementia to be involved in developing new services.

I am pleased to tell you that YoungDementia UK is launching a new monthly group starting on the 16 January 2019 for people living with Young Onset Dementia who live in the Sheffield area.

It will take place every month at

Graves Health and Sports Centre
Bochum Parkway
Sheffield
S8 8JR

The 13th February group tomorrow will be at 1.00-3.00 pm’

It is chance to meet new people, try new activities and access information about young onset dementia.

Download a poster about the group here.

For more information please contact our Group Coordinator, Natasha Wilson at natashawilson@youngdementiauk.org


Additional Funding

As Sheffield is our 4th largest city and it is quite a way from the north of the city to Graves Health and Sports Centre I am seeking additional funding for a second group in the north of the city.

Any kind soul reading this that may be able to help could contact Natasha for more information.


Note for Professionals and Organisations

I would hope that people receiving a diagnosis of Young Onset Dementia, would be referred by their Neurologist to the group, at the point of Diagnosis where appropriate, via Natasha Wilson.

Associated Health Professionals who identify someone who would benefit from being included should also refer people along with other medical professionals the council and other organisations.

Equality of treatment and services regardless of condition is a right set out under the The United Nations Convention on the Rights of Persons with Disabilities (CRPD)

For more information please contact our Group Coordinator, Natasha Wilson at natashawilson@youngdementiauk.org



 

Urgent Appeal to Tradespeople and Companies in the Sheffield UK Area and the Wider UK

Calling all tradespeople and companies in the Sheffield area and the wider UK
Urgent appeal for help:
We are currently supporting Steve who is in URGENT NEED OF YOUR HELP. Steve is living in a home which hasn’t had heating for almost a decade. He has fallen through the net and not been able to seek any help in the past. This has lead to years of isolation, inability to care for himself and the house becoming a state of disrepair. In recent months his health has significantly deteriorated due to living in such poor conditions. He is on a very low income and does not have any money to make his house into a livable state.
We are hoping to change this man’s life around however have come up stumbling block after stumbling block with grants to ensure that this can happen. Through working with other organisations, we are able to get a new heating system in place, new electrics and the hole in the roof to be fixed. We have appealed to skip companies and carpet companies to help with donating the flooring in the home. However this is not guaranteed. Any additional money we make through the gofundme page will be spent on decorating walls and making his house a warm and happy place for him to live.
If you can help in any way, please donate money via the go fund me page or your services by contacting Age UK Sheffield on 0114 250 2850.
Many thanks,
Sarah Hargreaves
Age UK Kendra Sheffield Phelps


Sunday Musings – 10 February 2019

It has not been too busy this week with a research appointment on Monday and talking to Sheffield Health and Social Care staff on Thursday.

The daily challenges of life with Dementia continue.

But sadly, the challenges of the UK Government continue to affect people living with Dementia and other disabilities continue, to divert us from a path to enablement and the removal of the view that we are a burden to society.

The Mental Capacity (Amendment) Bill and Social Care are two issues of great concern at this time.

They have the potential for conflicts of interest and rights abuses

That which is morally wrong cannot be politically right

(Sarat Chandra Bose)

Which is why these issues should be challenged.

YouDontAlwaysWinBattles

Spending time in silent reflection and Mindfulness this week, I came across a quote in some old notes by William Penn, which for me sums up Dementia Advocacy and awareness raising.

“I expect to pass through this world but once.

Any good therefore that I can do …

let me do it now.”


Consultation by the UK Ministry of Justice on the Mental Capacity (Amendment) Bill

The Mental Capacity (Amendment) Bill is currently going through Parliament and following increasing concerns about this legislation the Ministry of Justice has opened a consultation that runs until the 7th March 2019.

The bill is an attempt in part, to replace the Deprivation of Liberty Safeguard (DoLS) with the Liberty Protection Safeguard (LPS).

Increasingly, concerns are being expressed about how the LPS will work including:

Care Home managers being able to instigate an LPS

Hospital Administrators being able to instigate an LPS, which potentially if someone is in Hospital, fit for discharge but no Social Care available, the can be forced into a Care Home, to free up a bed against stier wishes.

The apparent lack of advocacy and representation.

The use of the term “Appropriate Person”

Replacing the term “Mental Disorder” with “Unsound Mind”

Increasingly, the bill is seen as a way of removing the rights of people with Dementia and other Disabilities which is why it is so important for DPOs, NGOs, other organisations, professionals and people affected by Dementia and other Disabilities, to take part in this consultation.

Link to UK Ministry of Justice Consultation


Petition from the 3 Nations Dementia Working Group

To: Secretary of State for Health and Social Care

Social Care and Dementia

Campaign created by
Three Nations Dementia Working Group

Following the UN Rapporteur’s visit to the UK, where he recognised that 49.9% of funding has been cut to local authorities, according to the Institute of Fiscal Studies, we demand a debate at the highest level of government and a solution to the gaps in social care provision which disproportionately impact upon all people affected by dementia.

Why is this important?

The lack of provision of social care in the UK is leading to immense distress for all people affected by dementia.

According to the Office of National Statistics, people with dementia are dying prematurely as a result of austerity.

Carers are not supported and are overwhelmed by the burden of unpaid care.

‘Local authorities… which perform vital roles in providing a real social safety net have been gutted by a series of government policies… The Government has remained determinedly in a state of denial’ (From the report by the United Nations Special Rapporteur on extreme poverty and human rights in the UK)

Please Sign the Petition


Videos

Peter Berry’s 84th Weekly YouTube Video

Stephen Tamblin’s 39th Weekly Facebook Video

You can also catch Stephen’s 7th YouTube video

BBC Video How to talk about disability without being awkward.


Blog

“Kindness costs nothing and can make someone’s day. Harsh words cost nothing and can throw someone’s world into disarray……I know which I like best…..how about you?”

Wendy Mitchell’s blog titled Our own Solitary Bubble……

Consultation by the UK Ministry of Justice on the Mental Capacity (Amendment) Bill

The Mental Capacity (Amendment) Bill is currently going through Parliament and following increasing concerns about this legislation the Ministry of Justice has opened a consultation that runs until the 7th March 2019.

The bill is an attempt in part, to replace the Deprivation of Liberty Safeguard (DoLS) with the Liberty Protection Safeguard (LPS).

Increasingly, concerns are being expressed about how the LPS will work including:

Care Home managers being able to instigate an LPS

Hospital Administrators being able to instigate an LPS, which potentially if someone is in Hospital, fit for discharge but no Social Care available, the can be forced into a Care Home, to free up a bed against stier wishes.

The apparent lack of advocacy and representation.

The use of the term “Appropriate Person”

Replacing the term “Mental Disorder” with “Unsound Mind”

Increasingly, the bill is seen as a way of removing the rights of people with Dementia and other Disabilities which is why it is so important for DPOs, NGOs, other organisations, professionals and people affected by Dementia and other Disabilities, to take part in this consultation.

Link to UK Ministry of Justice Consultation


Resources

The Mental Capacity Amendment Bill

Mental capacity law reform: threatens human rights

The current version of the Mental Capacity (Amendment) Bill will strip essential legal protections from the most vulnerable – Mind

Government amendment removes users’ rights to information before deprivation of liberty authorisation in DoLS replacement bill

Mental capacity changes give care homes too much power, critics say

Vulnerable dementia patients could be locked up for three years without review under ‘rushed’ government reform

Government deprivation of liberty ‘definition’ added to DoLS replacement bill but criticised as contrary to case law

DPOs call for support in battle to make ministers think again over attack on rights



 

Petition – The lack of provision of social care in the UK is leading to immense distress for all people affected by dementia and their care partners.

To: Secretary of State for Health and Social Care

Social Care and Dementia

Campaign created by
Three Nations Dementia Working Group

Following the UN Rapporteur’s visit to the UK, where he recognised that 49.9% of funding has been cut to local authorities, according to the Institute of Fiscal Studies, we demand a debate at the highest level of government and a solution to the gaps in social care provision which disproportionately impact upon all people affected by dementia.

Why is this important?

The lack of provision of social care in the UK is leading to immense distress for all people affected by dementia.

According to the Office of National Statistics, people with dementia are dying prematurely as a result of austerity.

Carers are not supported and are overwhelmed by the burden of unpaid care.

‘Local authorities… which perform vital roles in providing a real social safety net have been gutted by a series of government policies… The Government has remained determinedly in a state of denial’ (From the report by the United Nations Special Rapporteur on extreme poverty and human rights in the UK)

Please Sign the Petition



 

Re-Blog : “She’s still in there somewhere!” Is she? Really?

This article comes from a blog called “Mum has Dementia”

It shows the other side of the lived experience of Dementia.

“As I have said in many forms and guises previously, it is as if mum died a few years ago and as a replacement bus service we have an affable stranger who visits intermittently, a stranger who contributes little but is not a negative presence either.  I feel a sort of ambivalent inertia about the whole scenario.  I think I’ve done my grieving – now I’m just cracking on with the practicalities of another body to feed and toilet in a similar way to a small child or a pet.  Yes, it could be better.  But, it could be worse.”

“She’s still in there somewhere!” Is she? Really?