Sunday Musings – 19 May 2019

Tomorrow is the start of Dementia Action Week 2019.

It used to be called Awareness Week but awareness is fine, take Dementia Friends which is an awareness session NOT training but what is needed now is action to bring the treatment of Dementia in line with other chronic terminal diseases.

It is no longer acceptable for a GP not to refer a patient with Dementia for treatment because it is “not appropriate” or “they don’t understand“.

I have met many professionals who are going out of their way to develop the skills necessary to communicate with people living with Dementia in their clinics because they recognise the benefit to the person, their family and the healthcare system.

The Alzheimers Society Conference is on Tuesday and Wednesday this week at the Oval in London, drop by the 3 Nations Dementia Working Group stand if you are there.


I started another research study on Friday but at the time of writing this article, I cannot remember anything about it, apart from that the researcher was supportive, maybe some of it will return in the future.


Alzheimer’s Disease International also have a survey running which you may wish to take part in, especially if you are a man as by Friday, only 18% of respondents were men.

ADI wants to hear what YOU think about Dementia!


Nominations for the National Diversity Awards 2019

Image

Image

Image

You can nominate here


Other Nominations

You can nominate here


Petitions

See dementia as a terminal illness so under 65’s are instantly eligible for PIP (9 Oct 19)

Petition – The lack of provision of social care in the UK is leading to immense distress for all people affected by dementia and their care partners.

Petition – Pay Carers an allowance equivalent to a fulltime job at the National Living wage

Petition – No more PIP Assessments for People with Life Long Disability or Conditions

Justice for Jodey Whiting. Independent inquiry into deaths linked to the DWP


Consultations

Consultation – Learning disability and autism training for health and care staff

Australian Royal Commission into Violence, Abuse, Neglect and Exploitation of People with Disability

Investigating the impact of stigma on people living with dementia and carers: A questionnaire study PART 1

General Pharmaceutical Council – Consultation on guidance for pharmacist prescribers


Survey

Welcome to the Dementia 2020 Citizens’ Engagement Panel online Hub

Tell us your experience of living with Dementia

Sheffield CCG – Urgent Care Review 2019


Videos


Newsletters

Alzheimer Europe – April 2019

LEAD Coalition News – April 24 2019

Young Onset Dementia Alzheimer’s Group (YODA) – Newsletter No: 2


Blog

“My last post was a ranty one – hands up, it’s a fair cop.  I allow myself a ranty post on an annual basis and this was it (obviously, there is now absolutely zero chance of anything bad happening to mum this year that might warrant further ranting – because that’s how it works – phewf what a relief).

Mum Has Dementia’s blog titled Apologies – many Care Homes are clearly a FORCE FOR GOOD


New Resources

Young Dementia UK – A decision-making guide for GPs

Dementia words matter: A DEEP guideline on language about dementia

This Week on Dementia Diaries – 18 May 2019

Dementia Diaries is a UK-wide project that brings together people’s diverse experiences of living with dementia as a series of audio diaries. It serves as a public record and a personal archive that documents the views, reflections and day-to-day lives of people living with dementia, with the aim of prompting dialogue and changing attitudes.

Dementia Diaries Website

Who are we working with?

We are all part of the Dementia Engagement and Empowerment Project (DEEP). The Dementia Diaries initiative was designed by the non-profit communications agency On Our Radar (www.onourradar.org). It was launched by On Our Radar in January 2015 in partnership with Innovations in Dementia, Ownfone and Comic Relief, and was handed over to Innovations in Dementia in August 2016.

Phase 2 of the project is funded jointly by Comic Relief and BIG Lottery Fund.

A team from Leeds Beckett University was asked to evaluate the success of Dementia Diaries. A dementia-friendly summary of their findings is available here (pdf, opens in a new tab) or you can download the full report here (pdf, opens in a new tab).

The website provides the audio recording and a written transcript of each diary, you can volunteer to transcribe the audio diaries here


This weeks Diaries include:

JACQUI CAN’T RECOMMEND ‘I FEEL BETTER WHEN I PAINT’ ENOUGH.

CAROL CONGRATULATES RAE ON HER APPEARANCE ON TV

PAUL REPORTS FROM THE NORTHERN IRELAND DEEP GATHERING

STEPHEN IS HAPPY IF A BIT SORE AFTER HIS FIRST SESSION OF COPD REHAB.

JACQUI REPORTS ON A VISIT TO THE ARC CENTRE

RAE READS A NEW POEM

THE HAPPY TANDEMER REPORTS ON A JAUNT TO WHITBY

MELVYN HAS A SUGGESTION FOR INNOVATIONS IN DEMENTIA

WENDY READS A POEM WRITTEN FOR DEMENTIA DIARIES


Note for Professionals

You can use these Diaries as part of your Dementia Training.

As a courtesy, please email Rachel Niblock at Niblock@myid.org.uk to let her know that you will be using some of the Diaries, it helps when applying for funding in the future.

Dementia Action Week – Alzheimers Society Conference 21 & 22 May 2019

The Dementia Priority – Local and global action

Alzheimer’s Society’s vision is a world without dementia. Until the day we find a cure, we will create a society where those affected by dementia are supported and accepted, able to live in their community without fear or prejudice.

Globally every three seconds someone develops dementia and internationally it is recognised as a severe health crisis. We know that more research is being conducted than ever before, more collaboration on policy, and more support, awareness and community action – change is happening, but is it enough?

Our Annual conference will shine a light on the scale of the problem, but will focus on how our actions, our collaborations, policies, and the research we undertake as individuals, builds through partnerships to organisation, community and national change for people with dementia, their carers and families.

Building on our call to take action

Alzheimer’s Society Annual Conference 2019, takes place over two days at the start of Dementia Action Week (20-26 May) at the Kia Oval, London. We have worked with people affected by dementia, putting their voices and experience at the forefront of our work, to pull together a jam-packed programme.

For many a diagnosis of dementia can feel like the end of their life, leading to feelings of social isolation and loneliness. We live in a society with a support system that has not yet responded to the scale of the challenge dementia presents, meaning people with dementia also face greater inequity and lack of access to the appropriate and affordable care and support they need and deserve.

Research can help us understand more about the diseases that cause dementia and provide evidence for how best to support people affected, but without health and social care systems fit to use this research and meet the needs of people with dementia, we will not make the progress urgently needed in the UK and beyond.

Together we are changing the landscape of dementia forever, and our conference unites those personally and professionally affected by dementia to focus on the latest progress we are making and the challenges for the future.

Key themes

• Supporting People affected by dementia and their carers
• Building a movement for change
• Research to transform care and discover new treatments

Key speakers:

  • Caroline Dinenage MP, Minister of State for Health and Social Care
  • Professor Steve Powis, National Medical Director NHS England
  • Professor Dave Sharp, UK DRI Care and Technology Associate Director, Imperial College
  • Suzanne Cahill, Author and Professor of Social Work and Social Policy, Trinity College Dublin
  • John O’Brien, Professor of Old Age Psychiatry, University of Cambridge
  • Julie Ogley, Incoming President of Association of Directors of Adult Social Services

And many more …

What do conference delegates gain access to?

  • A jam packed two-day conference programme
  • People with dementia and carers sharing their experiences.
  • Over 10 main conference sessions, each focused on a different aspect of dementia care, research and policy.
  • 16 parallel sessions covering the latest research updates and service improvements.
  • Over 80 expert speakers from across research, policy, care, government and community groups
  • Exhibition stands to show innovative products and services.
  • Our interactive conference App.
  • Over 100 posters showcasing pioneering work in the dementia field.
  • Panel discussions and audience Q and As.
  • CPD accreditation.
  • Networking opportunities – via our drinks reception and App networking too

Who should attend?

This is a must attend event for anyone working in health and social care, local and national government, policy and research including;

  • International and national dementia researchers/organisations
  • Alzheimer’s Society funded researchers
  • Central and local government
  • NHS and third sector organisations
  • Clinicians
  • Commissioners
  • Leading influencers in health and social care
  • Providers of community health services
  • Local authorities
  • Research Strategy Council & Grant Advisory Board members
  • Members of our Dementia Friendly Communities Programme
  • Representatives of Dementia Friendly businesses
  • Prime Minsters task and finish group
  • People affected by dementia
  • Research network volunteers
  • Dementia Champions

Programme – Day 1 – 21 May 2019

Time Title Speaker
 9am Registration, exhibition, posters and refreshments
 9.30am Welcome and housekeeping Richard Madeley, TV Presenter and Journalist
9.45am Stepping up national action on dementia Jeremy Hughes CBE, CEO, Alzheimer’s Society
10.00am United by experience, united against injustice, united in action Lesley Calvert, Dementia Voice Volunteer

Tutiette Thomas, Dementia Voice Volunteer

Angela Sandiford, Dementia Voice Volunteer

 

10.30am

Dementia and human rights  Suzanne Cahill, Author and Professor of Social Work & Social Policy, Trinity College Dublin
 11.00am Refreshments, exhibition, posters and networking
 11.30am Care Research & technology at the UK DRI: Improving lives today and tomorrow Professor Dave Sharp, UK DRI Associate Director, Care Research and technology at Imperial College London
 12.00pm Parallel Sessions:

  1. Care homes – more than just a home
  2. Improving diagnosis and support for people with young onset dementia
  3. United Against Dementia: working together to make communities dementia-friendly
  4. Breaking new knowledge in dementia; towards new diagnosis and treatment
 1.00pm Lunch – Exhibition, posters, refreshments and networking
 1.45pm Lunchtime drop-in sessions:

  • Oral posters
  • Global Dementia Friends
  • Innovation Game Storming
 2.30pm Parallel Sessions:

  1. Active lives in Dementia
  2. Dementia and Data – The Dementia Intelligence Network
  3. An overlooked majority – women and dementia can no longer be ignored
  4. From proving to improving: the involvement of people affected by dementia in research
3.40pm Exhibition, posters and refreshments
4.00pm Joining up health, social care and public health – developing  solutions for an older population living with dementia Sandy Sweet, Volunteer Ambassador, Alzheimer’s Society

Julie Ogley, President of ADASS

Caroline Dinenage MP, Minister of State for Health

and Social Care

Professor Steve Powis, National Medical Director NHS England

Richard Murray, CEO King’s Fund

Kathryn Smith, Chief Operating Officer, Alzheimer’s Society

 5.00pm Recap of the day and closing remarks Richard Madeley, TV Presenter and Journalist
 5.30pm Drinks reception and 40th Anniversary celebration

(supported by Surrey Cricket Club)

Morella  Kayman, Vice-President, Alzheimer’s SocietyDuncan Jones, Trustee, Alzheimer’s Society

Programme – Day 2 – 22 May 2019

Time Title Speaker
 9.00am Registration, exhibition, posters and refreshments
 9.20am Welcome and housekeeping Duncan Jones, Trustee, Alzheimer’s Society
9.30am Address by the Secretary of State for Health and Social Care Rt Hon Matt Hancock MP, Secretary of State for Health and Social Care
 9.50am Stepping up the global action on dementia  Lenny Shallcross, Executive Director, World Dementia Council

Fiona Carragher, Chief Policy and Research Officer, Alzheimer’s Society

 10.15am Working together to build inclusive communities Catherine Anderson, CEO , Jo Cox Loneliness Commission

Sally Copley,  Director of Policy, Campaigns & Partnerships, Alzheimer’s Society

Chloe Moffatt, Programme Manager, Girls Brigade Northern Ireland

Larry Gardiner, Steering Group member, 3 Nations Dementia Working Group

 11.00am Refreshments, exhibition, posters and networking
 11.30am Parallel Sessions:

  1. Caring for Family Carers
  2. Breaking new knowledge in dementia: towards new treatments
  3. Dementia Voice – coproduction and involvement of people with dementia
  4. Social Care – how do we break the gridlock?
 12.40pm Lunch, exhibition, posters and networking
 1.15pm Lunchtime drop-in sessions:

  • Oral posters
  • Ask the Doctor: How might Alzheimer’s disease be diagnosed and treated in the future?
  • Innovation Game Storming
2.00pm Welcome and introduction to the afternoon – Charlie Webster, Sports and Television Presenter
 2.05pm Dementia Connect  – support for everyone with a dementia diagnosis whenever they need it Helen Foster, Director of Operations, Alzheimer’s Society

Max Oosman, Community Mental Health Nurse Practitioner, Lancashire NHS Foundation

 2.35pm Parallel Sessions:

  1. Connection and expression through music and arts
  2. Personalised Care for Dementia, and the National launch of the Dementia Action Group
  3. Dementia Friendly Hospital Initiatives
  4. What are the potentials for everyday tech to support better dementia care?
 3.45pm Registration, exhibition, posters and refreshments
 4.05pm Brain Health and Preventing Dementia John O’Brien, Professor of Old Age Psychiatry, University of Cambridge
4.35pm Changing the dialogue on dementia John Middleton, Actor

Jane Moore, Journalist and TV presenter

Trish Powell, Executive Producer, CPL Productions

Nicci Gerrard, Observer columnist and author

5.15pm Recap of the day and closing remarks Jeremy Hughes CBE, CEO, Alzheimer’s Society

Charlie Webster, Sports and Television Presenter

5.25pm End of conference 

Next Month – Alzheimer’s Society – Cupcake Day – 13 June 2019

Sign up to Cupcake Day

It’s time to dust off your bowls and whip out your whisks – Cupcake Day is back! Whether you bake it or fake it, sign up today and we’ll send you out a free fundraising kit.

 

Sign up today

Cupcake day

Hosting your Cupcake Day

  1. Sign up and receive your free fundraising kit in the post.
  2. Simply decide when and where to host your Cupcake Day. Cupcake Day is 13 June 2019, but you can host yours on any day that suits you!
  3. Start baking and/or buying delicious treats for your day (yes, faking is definitely allowed!) and raise as much dough as possible to help beat dementia.

What’s in your fundraising kit?

  • Posters to help you spread the word
  • Fundraising ideas and fun games to play on the day
  • A donation box and Gift Aid form (for the all-important ‘dough’)
  • Cake toppers and decorations
  • A selfie-frame to share your creations on social media
cupcake kit

How you’re baking a difference

In the average time it takes to bake a batch of cakes, six people in the UK will develop dementia. It is now the leading cause of death in England and Wales, overtaking both cancer and heart disease.

Your Cupcake Day can help to fund pioneering research, crucial support services and vital care. By hosting your day, you are uniting with us in the fight against the UK’s biggest killer.

Until the day we find a cure, because of Cupcakers like you, Alzheimer’s Society can continue to be here for anyone affected by dementia – wherever they are, whatever they’re going through.

Cupcake Day has raised £2.7 million since 2016 – let’s make this year our biggest yet!

Cupcake Day Website

Young Dementia Network – Research Event – Sheffield – 24 June 2019

Research Event

The Young Dementia Network would like to invite you to their second research event.

This event will provide an opportunity for people living with, or affected by, young onset dementia to connect with researchers and student researchers currently researching in the field of young onset dementia.

The focus of the day follows on from the research event we held last year where six topics for further research emerged. Young Dementia Network members have chosen three priorities

• Employment

• Health and social care education

• Family interventions (including children and young people)

We hope to secure funding to make this event free to attend but may have to charge up to £11 per person.

Monday 24 June 10.30am-4.00pm

Who will be attending:

•      People living with young onset dementia 

•      Family members and carers

•      Experienced researchers

•      Early career researchers

•      Junior researchers

Promote young onset dementia research

Consider three areas for further research

Develop partnerships and collaborations 

Venue:

The Diamond

University of Sheffield

32 Ladygreave Road

Sheffield

S3 7RD

Places are strictly limited.

Please RSVP to express your interest in attending by Friday 31 May 2019 including any dietary requirements in your email. network@youngdementiauk.org

If you are a researcher and would like to present a poster that is relevant to young onset dementia, please let us know via email.

Poster presentations are limited to a maximum of 10.

This event is supported by:

University of Bradford

University of Nottingham

Young Dementia UK

 

ADI wants to hear what YOU think about Dementia! by 14 June 2019

ADI wants to hear what YOU think about Dementia!

Alzheimer’s Disease International (ADI) has commissioned the London School of Economics and Political Science (LSE) to help conduct the world’s largest survey on people’s attitudes to Dementia. The results will form the basis of their World Alzheimer Report 2019.
ADI need more men to take part, by 10 May 2019 only 18% of completed surveys were by men.
The survey is now available in 25 languages with more to be added.

The survey will be available from:

15 April to 14 June 2019

The survey will only take around 10 minutes to complete and will be available in multiple languages. Please note that we will be adding more languages over the next two weeks. It will be predominantly multiple choice, accessible – available both online and offline – and is fully anonymous.

Please encourage the men out there to take part as the last I heard only 20% of respondents were men.

ADI wants to hear from:
  • The general public
  • Health and care professionals
  • People living with Dementia
  • Carers of people living with Dementia

Please visit www.alz.co.uk/research/world-report-2019 if you are interested in taking part and share the link far and wide!

The survey will only take 10 minutes of your time but completing it will benefit people living with dementia and the families all over the world.

This is the most important dementia-related survey that you will do this year.


If you know any groups or organisations who will promote the survey please email j.mcgowan@alz.co.uk for a toolkit, including social media assets and draft messages.


Thank you for your support, 

The ADI team


Sunday Musings – 12 May 2019

 

It’s been a busy couple of weeks travelling and attending meetings etc, culminating in being on a panel for an Alzheimer’s Disease International Webinar on Friday.

ADIwebinar1

All smiles, you might say “you don’t look like you have Dementia” reader, but Dementia is a hidden disability.

Behind the facade of smiles, a running battle is taking place, to participate in the webinar and to “appear normal”, whatever that is, for 60 minutes.

Game of Thrones it is not, literally a fight to the death it certainly is.

A battle between a person and an insidious chronic terminal disease, compounded by comorbidities, certainly.

Made even harder by the judgement of others and the continuing abuse of our rights.


A couple of weeks ago, I met Rachael Maskell MP, chair of the APPG for Ageing and Older people at Portcullis House in Westminster to talk about the Alzheimer’s Society proposal for a Dementia Fund.

I was one of many members of the 3 Nations Dementia Working Group, who have had the opportunity to speak to MPs about the proposal.

I would like to extend my thanks to Rachael for writing and the 68 MPs who have signed an open letter to health secretary Matt Hancock asking for people (living) with Dementia to be given personal budgets, which they can spend on care home costs or home adaptations.

MPs call for Dementia Fund to help people with dementia pay for care

The letter says ‘While people with cancer (and other chronic terminal diseases) have their treatment costs covered by the NHS, those with Dementia struggle to finance the increasing costs of care as council-run social care is cut back.’

Over 60 MPs support Alzheimer’s Society’s call for new £2.4bn Dementia Fund

Currently, they way people living with Dementia are treated can be in breach of International Law via

The United Nations Convention on the Rights of Persons with Disabilities (CRPD)

including Article 25:

“States Parties recognize that persons with disabilities have the right to the enjoyment of the highest attainable standard of health without discrimination on the basis of disability. States Parties shall take all appropriate measures to ensure access for persons with disabilities to health services that are gender-sensitive, including health-related rehabilitation. In particular, States Parties shall:

a) Provide persons with disabilities with the same range, quality and standard of free or affordable health care and programmes as provided to other persons, including in the area of sexual and reproductive health and population-based public health programmes;

b) Provide those health services needed by persons with disabilities specifically because of their disabilities, including early identification and intervention as appropriate, and services designed to minimize and prevent further disabilities, including among children and older persons;

c) Provide these health services as close as possible to people’s own communities, including in rural areas;

d) Require health professionals to provide care of the same quality to persons with disabilities as to others, including on the basis of free and informed consent by, inter alia, raising awareness of the human rights, dignity, autonomy and needs of persons with disabilities through training and the promulgation of ethical standards for public and private health care;

e) Prohibit discrimination against persons with disabilities in the provision of health insurance, and life insurance where such insurance is permitted by national law, which shall be provided in a fair and reasonable manner;

f) Prevent discriminatory denial of health care or health services or food and fluids on the basis of disability.”


Alzheimer’s Disease International also have a survey running which you may wish to take part in, especially if you are a man as by Friday, only 18% of respondents were men.

ADI wants to hear what YOU think about Dementia!


Nominations for the National Diversity Awards 2019

Image

Image

Image

You can nominate here


Other Nominations

You can nominate here


Petitions

See dementia as a terminal illness so under 65’s are instantly eligible for PIP (9 Oct 19)

Petition – The lack of provision of social care in the UK is leading to immense distress for all people affected by dementia and their care partners.

Petition – Pay Carers an allowance equivalent to a fulltime job at the National Living wage

Petition – No more PIP Assessments for People with Life Long Disability or Conditions

Justice for Jodey Whiting. Independent inquiry into deaths linked to the DWP


Consultations

Consultation – Learning disability and autism training for health and care staff

Australian Royal Commission into Violence, Abuse, Neglect and Exploitation of People with Disability

Investigating the impact of stigma on people living with dementia and carers: A questionnaire study PART 1

General Pharmaceutical Council – Consultation on guidance for pharmacist prescribers


Survey

Welcome to the Dementia 2020 Citizens’ Engagement Panel online Hub

Tell us your experience of living with Dementia

Sheffield CCG – Urgent Care Review 2019


Videos


Newsletters

Alzheimer Europe – April 2019

LEAD Coalition News – April 24 2019

Young Onset Dementia Alzheimer’s Group (YODA) – Newsletter No: 2


Blog

“Since I got back from holiday mum has been more grumpy than usual. Sometimes she feels she has been wronged, withdraws, gives monosyllabic responses and behaves a bit like a sulky teenager. Not just with me, but with special carers that she normally gets on with. Monday is a good example of life this last week.

Julia Powell’s blog titled A Day in the Life of Mum, Dementia and Me


New Resources

Young Dementia UK – A decision-making guide for GPs

Dementia words matter: A DEEP guideline on language about dementia



 

 

This Week on Dementia Diaries – 11 May 2019

Dementia Diaries is a UK-wide project that brings together people’s diverse experiences of living with dementia as a series of audio diaries. It serves as a public record and a personal archive that documents the views, reflections and day-to-day lives of people living with dementia, with the aim of prompting dialogue and changing attitudes.

Dementia Diaries Website

Who are we working with?

We are all part of the Dementia Engagement and Empowerment Project (DEEP). The Dementia Diaries initiative was designed by the non-profit communications agency On Our Radar (www.onourradar.org). It was launched by On Our Radar in January 2015 in partnership with Innovations in Dementia, Ownfone and Comic Relief, and was handed over to Innovations in Dementia in August 2016.

Phase 2 of the project is funded jointly by Comic Relief and BIG Lottery Fund.

A team from Leeds Beckett University was asked to evaluate the success of Dementia Diaries. A dementia-friendly summary of their findings is available here (pdf, opens in a new tab) or you can download the full report here (pdf, opens in a new tab).

The website provides the audio recording and a written transcript of each diary, you can volunteer to transcribe the audio diaries here


This weeks Diaries include:

JACQUI IS UNHAPPY WITH A LOCAL TRANSPORT SCHEME

THE WEATHER HAS WREAKED HAVOC WITH GLENDA’S NEWLY PLANTED FLOWERS.

LARRY READS A NEW POEM ‘UNTIL IT’S NOT’

CAROL REPORTS ON HER LONG JOURNEY FROM KENT TO EXETER

STEPHEN REPORTS ON A BUSY WEEK AND BUSY PERIOD AHEAD.

RON MUSES ON THE POTENTIAL OF NEUROGENESIS

MELVYN IS AWESTRUCK BY THE BBC PROGRAMME OUR DEMENTIA CHOIR.

ELAINE REPORTS ON A VERY LONG AND UNCOMFORTABLE WALK.

JOY IS BUILDING SUPPORT FOR HER WORK TO RAISE AWARENESS IN SCHOOLS.

AGNES TALKS ABOUT HER NEW BOOK.

RAYMOND FEELS AIRPORTS SHOULD BE MORE AWARE OF DEMENTIA.

STEPHEN LOOKS FORWARD TO COPD REHAB

STEPHEN IS HAPPY IF A BIT SORE AFTER HIS FIRST SESSION OF COPD REHAB.

TOMMY TALKS ABOUT BEING AT THE NORTHERN IRELAND DEEP GATHERING

TOMMY AND PAUL USE SONG TO INVESTIGATE A HOLE

CAROL CONGRATULATES RAE ON HER APPEARANCE ON TV

GEORGE REFLECTS ON THE 5 STEPS TO WELLBEING APPROACH.


Note for Professionals

You can use these Diaries as part of your Dementia Training.

As a courtesy, please email Rachel Niblock at Niblock@myid.org.uk to let her know that you will be using some of the Diaries, it helps when applying for funding in the future.

Visual/Spacial Problems in Dementia

People with a diagnosis of Alzheimer’s may not always experience memory loss as their first symptom of the disease, with younger people more likely to have problems with judgement, language or visual and spatial awareness than older people.

People living with dementia can have difficulties with vision and perception which causes them to misinterpret the world. The process of seeing is complicated and there are many points where things can go wrong.

Disturbances in vision and perception can cause emotional responses and even safety risks.

Visuospatial function refers to cognitive processes necessary to “identify, integrate, and analyze space and visual form, details, structure and spatial relations” in more than one dimension.

Visuospatial skills are needed for movement, depth and distance perception, and spatial navigation. Impaired visuospatial skills can result in, for example, poor driving ability because distances are not judged correctly or difficulty navigating in space such as bumping into things.

Visuospatial processing refers to the “ability to perceive, analyze, synthesize, manipulate and transform visual patterns and images”. Visuospatial working memory is involved in recalling and manipulating images to remain oriented in space and keep track of the location of moving objects.

Visual Awareness problems:

  • being less sensitive to differences in contrast, such as black and white, and contrast between objects and background
  • being less able to detect movement
  • changes to the visual field (how much you can see around the edge of your vision, while looking straight ahead)
  • being less able to detect different colours. For example, a person may have problems telling the difference between blue and purple
  • changes to how the pupil reacts to light
  • problems directing or changing gaze
  • problems with the recognition of objects, faces and colours
  • losing the ability to say what has been seen
  • double vision
  • problems with depth perception (judging the distance of objects from the person).
  • Difficulties with orientation

https://youtu.be/e0AGfMD6o48

Spacial Awareness problems:

  • at its most simplistic it is an awareness of where your body is in relation to everything else, and there may also be a time factor involved (i.e what is likely to happen in the next few moments).
  • having trouble judging distances e.g. when going up and down steps
  • bumping into things
  • swerving to avoid door frames
  • difficulties reaching for things , such as a cup of tea or door handle
  • getting lost or disorientated, even in familiar environments.
  • reaching out for things and missing them

https://youtu.be/cpV57QGdU7I

  • Hallucinations:
  • A hallucination can involve seeing, hearing, smelling, feeling, tasting (or a combination of them all) something that isn’t there.
  • Hallucinations are caused by changes in the brain.
  • Hallucinations experienced by people with dementia can involve any of the senses, but are most often either visual (seeing something that isn’t really there) or auditory (hearing noises or voices that do not actually exist)
  • They seem real to the person experiencing them but cannot be verified by anyone else.
  • a visual hallucination could be seeing bugs crawling over the bed that aren’t actually there.