Category: Sunday Musings

Sunday Musings – 17 March 2019

The shame of the sad events at the Mosque’s in Christchurch, New Zealand on Friday, underpin how society is becoming more divisive.

In the 21st Century, people have become media victims, where their looks, thoughts and actions are being controlled and manipulated by a media, hell bent on selling copies and profits to the detriment of all.

They present a perfect human being, through looks, employment, hobbies, relationships etc that leaves no room for all the differences that make us all human.

They preach intolerance of how we look and act which spreads into other aspects of society such as race, religion and disability, leading to the hate of that which is different to their perceptions.

Nostradamus predicted that a Third World War would come from  the east and with the continued inequalities and intolerance in society it is not hard to imagine a time when those discriminated upon, turn against the haters.

Many civilisations such as the Romans, became preoccupied with looks and money to the detriment of those who didn’t meet society’s norms and those less able and look what happened to them.

Friday’s article The Times They Are A-Changin’ – Part 2 was an attempt to redress the balance of the stigma of some professionals and care partners, that question the diagnosis of Dementia at a younger/earlier stage.

These experiences of those professionals and care partners are undoubtedly negative, who mainly experience the negative side of Dementia through the emotions and emotional responses of the person they care for in the Palliative stage.

But there are three main stages to Dementia, early, middle and Palliative, like Cancer which has 4. You do not hear comments that someone with stage 1 to 3 Cancer, doesn’t have cancer because they don’t look like they have Cancer, they still work, drive, speak at events, campaign etc.

As with any chronic terminal disease, the challenges of each stage, differ and increase through the stages.

It has never been the intention of people living with Dementia to say that the perceptions and experiences of professionals and care partners of the Palliative stage are wrong.

However, because all you see in the media is the Palliative stage of Dementia, as I know from my own experience, that narrative has a disabling effect upon diagnosis and there is a need to redress the balance to show that a diagnosis need not necessarily be

The beginning of the end, but the end of the beginning with an earlier diagnosis.

That there may be a life to live within the reducing limits of a diagnosis, when diagnosed at an earlier stage.

That we do however recognise and even fear the challenges of the Palliative stage of Dementia.


Nominations for the National Diversity Awards 2019

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Other Nominations

You can nominate here

You can nominate here


Petitions

Petition – The lack of provision of social care in the UK is leading to immense distress for all people affected by dementia and their care partners.

Petition – Pay Carers an allowance equivalent to a fulltime job at the National Living wage

Petition – No more PIP Assessments for People with Life Long Disability or Conditions

New Justice for Jodey Whiting. Independent inquiry into deaths linked to the DWP


Consultations

Consultation – Learning disability and autism training for health and care staff

New Australian Royal Commission into Violence, Abuse, Neglect and Exploitation of People with Disability

New Study Title: Investigating the impact of stigma on people living with dementia and carers: A questionnaire study PART 1


 

Videos

Stephen Tamblin’s 44th Weekly Video


Poetry

Bitter Sweet Success……..Poem


Blog

“I first met James McKillop back in 2001, not long before the publication of his book, ‘Opening Shutters, Opening Minds’. We shared a love of photography and had a similar sense of humour. It was James who introduced me to the Scottish Dementia Working Group (or Working Party as it was called then).”

Alzheimer’s Society Scotland’s blog titled Journeying through Dementia Designing Post Diagnostic Support with People with Dementia


New Resources



 

Sunday Musings – 10 March 2019

It’s been a foggy few days.

Friday and Saturday passed unnoticed, even forgetting to post an article yesterday.

People living with the early stage of Dementia, may not look like they have Dementia but beneath the façade they put up are increasing challenges which we can still recognise even if we cannot recognise those challenges in a daily basis.

We can still recognise at times that we are not the person we once were and that the changes happening over time are not normal.

From childhood we develop life skills which become a normal part of daily life but when those skills begin to disappear and challenges increase, those changes are not normal.

Becoming reliant on technology and those around us is not a choice we make but a necessity thrust upon us by an insidious invisible disease.

This week was International Women’s Day, a day celebrating the true value of women.

For too long they have been seen as inferior yet they are the backbone to Society.

My Mother didn’t believe in the stereotypes as I was growing up, I had to learn to cook and sew, clean and washing etc.

As for many Men, wives become carers to their children, parents, husbands and partners,  to the detriment of their own health


Skydiving

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Anna Harrison, Rachel Niblock and Wendy Mitchell should have been Skydiving in aid of Young Dementia UK yesterday, however the weather caused it to be postponed.

Rachel Niblock’s next attempt will be this Friday, I am not sure when Wendy and Anna’s next attempt will be but probably next weekend.

In the meantime, there is still time to sponsor them. details on how to sponsor them is here


Nominations for the National Diversity Awards 2019

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You can nominate here


Petitions

Petition – The lack of provision of social care in the UK is leading to immense distress for all people affected by dementia and their care partners.

Petition – Pay Carers an allowance equivalent to a fulltime job at the National Living wage

Petition – No more PIP Assessments for People with Life Long Disability or Conditions


Consultations

Consultation – Learning disability and autism training for health and care staff

Consultation – Have Your Say on Sheffield’s End of Life Care Services


Videos


Blog

“… How I wish I had someone who could actually sit and do these things for me, or with me.  I am understanding that it may be time to de-clutter massively ready for when I progress.  Time to get a cleaner to help me keep my home clean and tidy.

In the meantime I will continue amidst the constant exhaustion, to give a voice for dementia when I can.

Gill Taylor’s blog titled Dementia Friendly Communities



 

Sunday Musings – 24 February 2019

A busier week this week.

Talking to Masters in Dementia Studies students at Sheffield University, Making a Video for Sheffield CCG and numerous online meetings including one for the “Crystal Clear Advisory Group” where people living with Dementia advise organisations on the language, documentation, website and leaflet layouts.

I have added a second blog to this weeks musings, George Rook’s “Fake news: lies, damned lies, and statistics” talking about Service Commissioners (CCGs) making decisions, this time in Shropshire, completely ignoring our rights under the United Nations Conventions and International Law:

For us, Without us

Deciding what we want, ignoring our needs

It is time for people to stop making decisions for us, to involve us in service provision  and development, to learn and implement into decision making process such United Nations conventions as the Human Rights Convention and the Convention on the Rights of persons with disabilities and to realise that if they do not

they are in breach of International Law as recognised by the UK Government

Would they treat people living with Cancer, Heart Failure, Stroke, Diabetes etc the same as they treat people living with Dementia, of course not, the public outcry would be enormous, so why does society let these people and organisations get away with it.

In time the old guard of the dinosaur medical professionals who only see Dementia in the Palliative stage will be extinct.

A new generation of medical professionals are coming, that get there are 3 stages of Dementia, that the challenges and needs in each of those stages differ, that there is a person inside the fossil of Dementia and that while there is no way currently to divert the asteroid of Dementia wiping away the person over time, there may be some sort of life to lead.

Mother nature rebuilt life on Earth, modern professional are beginning to rebuild the lives of people living with Dementia and their families with new innovative sometimes simple or obvious ways of enablement, upholding their rights and involving them in developing new systems, services and treatments rather than the caveman sledgehammer to crack a nut.

I managed to learn how to put links to video, to click and play rather than having to go on a separate page, in my articles this week.

The simple solution would be to ask someone but I chose to “Google It” as my Grandson Lucas would say, partly in the hope that I may remember what to do better but also giving myself a sense of achievement, learning something new without assistance.


Videos

 


Blog

“In the cold light of day, I have some advice for myself. Stop panicking for a minute. Really listen to and understand what is behind mum’s agitation. Remembering advice from Penny Garner, of Contented Dementia, I plan to spend more time noting mum’s questions, trying out different responses and evaluating what works. 

I also need to get better at joining mum in her reality.”

Julia Powell’s blog titled Caring in the Face of Physical Distress and Overwhelming Anxieties


Blog 2

“These commissioners and providers still act as Gods who believe they know what we need and decide what we can have.

It is appalling that they can ignore national models of good practice. Ignore the people who have the disease. Ignore research evidence. 

We have a disease that cannot be cured, or even slowed. The only thing that you can do for us is help us to live well while we can, to not withdraw, to be able to engage in our communities, and to do what makes us smile.”

George Rook’s blog titled Fake news: lies, damned lies, and statistics



Sunday Musings – 17 February 2019

This week has been tiring and at times busy, but it has also been a time of reflection.

A lot has happened and a lot has changed over the last five years or so.

But in many ways, nothing has changed.

The Mental Capacity (Amendment) Bill, the Long Term NHS Plan, The Green Paper on Health and Social Care all fall short on what is necessary to alleviate the concerns of people living with Dementia, other Disabilities and the United Nations.

The lack of post diagnosis support services and assessments from the point of a diagnosis is still lacking especially if you are under 65.

Equality of services is another issue that needs addressing as is the involvement of the LBGT and BAME communities in bringing about change, to better the lives of people living with Dementia, other disabilities and their care partners.

Removing stigma and ignorance of professionals and society as a whole.

Changing the narrative of the media to be more enabling rather than disabling.

Whether any of these can be achieved in my lifetime is unknown, as many things are still as they were 40 years ago.

Hopefully in another 40 years, society will look back in shame at the way people with Dementia and other disabilities are treated.

But that will be too late for many of us.


Petitions

Petition – The lack of provision of social care in the UK is leading to immense distress for all people affected by dementia and their care partners.

Petition – Pay Carers an allowance equivalent to a fulltime job at the National Living wage


Consultations

Consultation by the UK Ministry of Justice on the Mental Capacity (Amendment) Bill

Consultation – Learning disability and autism training for health and care staff


Videos

Peter Berry’s 85th Weekly YouTube Video

Stephen Tamblin’s 40th Weekly Facebook Video

You can also catch Stephen’s 7th YouTube video

BBC Video How to talk about disability without being awkward.


Poetry

This week I had a go at some poetry – see what you think

…What life’s really like, Living in Dementialand.


Blogs

So, there is a lot you can do to make it easier for your patients who live every day and every hour with their dementia to get the help, care and understanding they need and deserve in order to live as well as they can.

And remember: 25% of people with dementia only leave their homes once a month. There’s a good chance it will be you who they visit. Make it a good day for them.

George Rook’s blog titled Be A Dementia Friendly General Practice

Also:

“There is a growing movement of people with dementia with a new (or a louder) voice that is now seeking, rightly, to take ownership of research under the ‘nothing about us without us’ rallying call. Indeed, as my friend Paul, a member of York Minds and Voices, said several years ago now, ‘If you’re doing research about dementia and you don’t include people with dementia, then you’re wasting your bloody time’.”

Damian Murphy’s blog for Innovation in Dementias CIC titled Comfortable



 

Sunday Musings – 10 February 2019

It has not been too busy this week with a research appointment on Monday and talking to Sheffield Health and Social Care staff on Thursday.

The daily challenges of life with Dementia continue.

But sadly, the challenges of the UK Government continue to affect people living with Dementia and other disabilities continue, to divert us from a path to enablement and the removal of the view that we are a burden to society.

The Mental Capacity (Amendment) Bill and Social Care are two issues of great concern at this time.

They have the potential for conflicts of interest and rights abuses

That which is morally wrong cannot be politically right

(Sarat Chandra Bose)

Which is why these issues should be challenged.

YouDontAlwaysWinBattles

Spending time in silent reflection and Mindfulness this week, I came across a quote in some old notes by William Penn, which for me sums up Dementia Advocacy and awareness raising.

“I expect to pass through this world but once.

Any good therefore that I can do …

let me do it now.”


Consultation by the UK Ministry of Justice on the Mental Capacity (Amendment) Bill

The Mental Capacity (Amendment) Bill is currently going through Parliament and following increasing concerns about this legislation the Ministry of Justice has opened a consultation that runs until the 7th March 2019.

The bill is an attempt in part, to replace the Deprivation of Liberty Safeguard (DoLS) with the Liberty Protection Safeguard (LPS).

Increasingly, concerns are being expressed about how the LPS will work including:

Care Home managers being able to instigate an LPS

Hospital Administrators being able to instigate an LPS, which potentially if someone is in Hospital, fit for discharge but no Social Care available, the can be forced into a Care Home, to free up a bed against stier wishes.

The apparent lack of advocacy and representation.

The use of the term “Appropriate Person”

Replacing the term “Mental Disorder” with “Unsound Mind”

Increasingly, the bill is seen as a way of removing the rights of people with Dementia and other Disabilities which is why it is so important for DPOs, NGOs, other organisations, professionals and people affected by Dementia and other Disabilities, to take part in this consultation.

Link to UK Ministry of Justice Consultation


Petition from the 3 Nations Dementia Working Group

To: Secretary of State for Health and Social Care

Social Care and Dementia

Campaign created by
Three Nations Dementia Working Group

Following the UN Rapporteur’s visit to the UK, where he recognised that 49.9% of funding has been cut to local authorities, according to the Institute of Fiscal Studies, we demand a debate at the highest level of government and a solution to the gaps in social care provision which disproportionately impact upon all people affected by dementia.

Why is this important?

The lack of provision of social care in the UK is leading to immense distress for all people affected by dementia.

According to the Office of National Statistics, people with dementia are dying prematurely as a result of austerity.

Carers are not supported and are overwhelmed by the burden of unpaid care.

‘Local authorities… which perform vital roles in providing a real social safety net have been gutted by a series of government policies… The Government has remained determinedly in a state of denial’ (From the report by the United Nations Special Rapporteur on extreme poverty and human rights in the UK)

Please Sign the Petition


Videos

Peter Berry’s 84th Weekly YouTube Video

Stephen Tamblin’s 39th Weekly Facebook Video

You can also catch Stephen’s 7th YouTube video

BBC Video How to talk about disability without being awkward.


Blog

“Kindness costs nothing and can make someone’s day. Harsh words cost nothing and can throw someone’s world into disarray……I know which I like best…..how about you?”

Wendy Mitchell’s blog titled Our own Solitary Bubble……

Sunday Musings – 27 January 2019

Today is Holocaust Memorial Day

A time to remember and remind the younger generations of the atrocities of the Second World War.

It is estimated that six million members of the Jewish faith were brutally slaughtered during World War II as well as millions of other ethnic minorities including gypsies and the disabled.

Shortly after coming to power the Nazis began a propaganda campaign against mentally and physically disabled Germans. They did not fit into the Nazi stereotype of the pure ‘Aryan’, that is physically fit with an obedient mind to serve the Reich.

In addition, the Nazis viewed disabled people as a ‘burden’ on society, and said that they were ‘unable’ to work and ‘drained resources from the state’ and sadly these comments can be heard today.

As early as July 1933, the Nazis passed a law that allowed forced sterilisation of 360,000 men and women, who were deemed likely to produce ‘inferior’ children to prevent “hereditary diseased offspring”.

On July 14, 1933, the German government instituted the “Law for the Prevention of Progeny with Hereditary Diseases.” This law called for the sterilization of all persons who suffered from diseases considered hereditary, including mental illness, learning disabilities, physical deformity, epilepsy, blindness, deafness, and severe alcoholism.

With the law’s passage the Third Reich also stepped up its propaganda against the disabled, regularly labeling them “life unworthy of life” or “useless eaters” and highlighting their burden upon society.

The law allowed forced sterilisation of 360,000 men and women, who were deemed likely to produce ‘inferior’ children to prevent “hereditary diseased offspring”.

A diagnosis of “feeblemindedness” provided the grounds in the majority of cases, followed by schizophrenia and epilepsy.

Forced sterilization in Germany was the forerunner of the systematic killing of the mentally ill and the handicapped. In October 1939, Hitler himself initiated a decree which empowered physicians to grant a “mercy death” to “patients considered incurable according to the best available human judgment of their state of health.” The intent of the so called “euthanasia” program, however, was not to relieve the suffering of the chronically ill. The Nazi regime used the term as a euphemism: its aim was to exterminate the mentally ill and the handicapped, thus “cleansing” the “Aryan” race of persons considered genetically defective and a financial burden to society.

The idea of killing the incurably ill was posed well before 1939. In the 1920s, debate on this issue centered on a book co authored by Alfred Hoche, a noted psychiatrist, and Karl Binding, a prominent scholar of criminal law. They argued that economic savings justified the killing of “useless lives” (“idiots” and “congenitally crippled”).

Economic deprivation during World War I provided the context for this idea. During the war, patients in asylums had ranked low on the list for rationing of food and medical supplies, and as a result, many died from starvation or disease. More generally, the war undermined the value attached to individual life and, combined with Germany’s humiliating defeat, led many nationalists to consider ways to regenerate the nation as a whole at the expense of individual rights.

In 1935 Hitler stated privately that

“in the event of war, [he] would take up the question of euthanasia and enforce it” because “such a problem would be more easily solved” during wartime.

War would provide both a cover for killing and a pretext–hospital beds and medical personnel would be freed up for the war effort. The upheaval of war and the diminished value of human life during wartime would also, Hitler believed, mute expected opposition. To make the connection to the war explicit, Hitler’s decree was backdated to September 1, 1939, the day Germany invaded Poland.

For instance, after the Nazi invasion of Poland, the Nazis murdered thousands of seriously ill Poles in hospitals.

The experience gained as a result of the euthanasia programme was also put to use from 1941 as the Nazis sought to murder the Jews of Europe.

Systematic Killing of the Handicapped Five handicapped prisoners photographed at Buchenwald concentration camp for propaga...

Systematic Killing of the Handicapped Five handicapped prisoners photographed at Buchenwald concentration camp for propaganda purposes. 1938 – 1940 Hartheim Castle was a euthanasia killing center where people with physical and mental disabilities were killed by gassing and lethal injection. Hartheim, Austria

Fearful of public reaction, the Nazi regime never proposed a formal “euthanasia” law. Unlike the forced sterilizations, the killing of patients in mental asylums and other institutions was carried out in secrecy. The code name was “Operation T4,” a reference to Tiergartenstrasse 4, the address of the Berlin Chancellery offices where the program was headquartered.

Physicians, the most highly Nazified professional group in Germany, were key to the success of “T-4,” since they organized and carried out nearly, all aspects of the operation. One of Hitler’s personal physicians, Dr. Karl Brandt, headed the program, along with Hitler’s Chancellery chief, Philip Bouhler. T-4 targeted adult patients in all government or church-run sanatoria and nursing homes.

These institutions were instructed by the Interior Ministry to collect questionnaires about the state of health and capacity for work of all their patients, ostensibly as part of a statistical survey and were responsible for at least 70,000 deaths.

People with Disabilities <ul><li>Mentally disabled people were identified by a black triangle with the word “Blod” sewn on...

The completed forms were, in turn, sent to expert assessors physicians, usually psychiatrists, who made up “review commissions.” They marked each name with a “+,” in red pencil, meaning death, or a “” in blue pencil, meaning life, or “?” for cases needing additional assessment. These medical experts rarely examined any of the patients and made their decisions from the questionnaires alone. At every step, the medical authorities involved were usually expected to quickly process large numbers of forms.

The doomed were bused to killing centers in Germany and Austria walled-in fortresses, mostly former psychiatric hospitals, castles, and a former prison — at Hartheim, Sonnenstein, Grafeneck, Bernburg, Hadamar, and Brandenburg. In the beginning, patients were killed by lethal injection. But by 1940, Hitler, on the advice of Dr. Werner Heyde, suggested that carbon monoxide gas be used as the preferred method of killing. Experimental gassings had first been carried out at Brandenburg Prison in 1939. There, gas chambers were disguised as showers complete with fake nozzles in order to deceive victims — prototypes of the killing centers’ facilities built in occupied Poland later in the war.

To a certain extent both the Protestant and Catholic Churches in Germany protested against the euthanasia programme. In July 1941 a letter from the Catholic bishops was read out in all churches, declaring that it was wrong to kill.

Opposition to the programme increased amongst the Catholic population of Germany. During July and August 1941, Bishop Clemens August Graf von Galen, a Catholic Bishop issued three sermons condemning this practice; he sent a telegram of the third sermon to Hitler calling on him to “defend the people against the Gestapo”. This third sermon was also reproduced and sent all over Germany to families, and even to German soldiers on the Western and Eastern Fronts.

Fearing a public uprising across Germany, Hitler ordered a stop to the killings.

The Murder of the Handicapped

However, the policy continued in one way or another through to 1945.

Between the middle of 1941 and the winter of 1944-45, in a program known under code “14f13,” experienced psychiatrists from the T-4 operation were sent to concentration camps to weed out prisoners too ill to work. After superficial medical screenings, designated inmates Jews, Gypsies, Russians, Poles, Germans, and others were sent to those “euthanasia” centers where gas chambers still had not been dismantled, at Bernburg and Hartheim, where they were gassed.

At least a further 250,000 disabled people are believed to have died between 1941 and 1945.

Wartime, Adolf Hitler suggested, “was the best time for the elimination of the incurably ill.” and the murder of the disabled continued until 1945.

It is important not to repeat the mistakes of history, yet further genocides have continued worldwide, including in Rwanda and Bosnia.


You would think that society would have learned from the past reader but a quick search on Reddit shows a darker side to society.

The developmentally disabled are a burden on society

I believe severely mentally disabled people are nothing but a burden and a waste of everyone’s time.


The Bundestag voted in November 2011 to erect the memorial in honor of the victims of the Nazi’s so-called euthanasia program – code-named T4 – for Germans who were not considered “useful,” such as those who were physically handicapped, or psychiatric patients deemed unworthy to live.

At the unveiling of the memorial in Berlin, the then German culture minister, and Klaus Wowereit stated:

“We often forget that even today, around 10 percent of the people in our country live with mental or physical disabilities,”

“Our society has a social responsibility to these people… No life is unworthy.

You have our solidarity, our encouragement and our empathy.

You have the right to an equal life in our society.

Because only by caring is our society worth living in.”

In 21st Century Britain reader, everything has changed, or has nothing really changed…


It’s been a quiet week, a time to rest and recharge the batteries before the challenges that lie ahead.

The rights of people living with Dementia, under the United Nations Conventions and therefore International Law, will play an ever increasing role in advocacy in 2019 and beyond.

Decisions will more and more be challenged under these Conventions.

The decisions of so called “Best Interest Meetings” will be challenged more and more to show that their decisions comply with the United Nations Conventions and International Law.

CCG’s and Health Trusts will be challenged when they do not provide equal services between conditions.

The services that are provided for conditions such as Cancer, Heart Disease, Stroke, Diabetes etc, must be provided equally for Dementia under the United Nations Conventions and International Law.

Legislation such as the Mental Capacity (Amendment) Bill will be challenged where they have the potential to remove peoples rights under the United Nations Conventions.

As will transport companies who fail to provide adequate assisted travel and the lack of reasonable adjustments under the Equalities Act 2010.

Around the UK, there are small pockets of good practice.

But generally, everything has changed and nothing has changed.

The need to challenge rights abuses and learn from the lessons of the past is even more pressing.

Dementia and other Disabilities will no longer sit at the back of the room silently and passively as everything about us, is without us.

The lessons of the past, should not haunt all our futures.


Videos

Peter Berry’s 82nd Weekly YouTube Video

Stephen Tamblin’s 37th Weekly Facebook Video

You can also catch Stephen’s 7th YouTube video

BBC Video How to talk about disability without being awkward.


Blog

“Above all, we need to change the way we do dementia in this country.”

George Rook’s blog titled Visions that hide reality



 

Sunday Musings – 20 January 2018

The smokescreen of the playground politics of Brexit continues to mask the disability rights abuses prevalent in the UK.

We now have the possibility of a second referendum, for gods sake, get on and sort this mess out, one way or the other.

If the result of the first referendum can’t be honoured, who is to say the result of the second one will be. Do we keep having them until the media is happy with the result.

Get a grip May and Corbyn, there are too many other things going on that need sorting out. People are dying and their rights being abused whilst 650 MPs act like Infant School children acting out in the playground.

We have remainer May giving sound bites about respecting the result of the Referendum, playing political football with people’s lives

political football

and leaver Corbyn peering over the wall of decision, generally on a Wednesday at PMQs, like a wartime Chad,

chad

procrastinating, before retreating to obscurity,

pittot

whilst there only claim to fame will be destroying our once great Democracy and leaving us with a fractured society

wreathlaying


On a more pleasant note, on Monday I was on BBC Radio Sheffield with Donna Chadwick from Young Dementia UK talking about the monthly New Young Onset Dementia Support Group in Sheffield facilitated by Young Dementia UK, the next one now being on the 13th February 2019.

You can hear our interview here

The Sheffield Dementia Strategy consultation finished on Friday but I understand that the CCG has been asked to extend the deadline as it was poorly advertised and there are still many wishing to take part. Hopefully the CCG will make an announcement in the next few days.

With over 7,000 living with Dementia in Sheffield, I am sure only a small minority have had the opportunity to take part. I wonder how many in Care Homes in Sheffield have contributed in line with Article 29 of the UN CRPD.


In The News

Thanks to Nigel Hullah for sight of this article

“Changes to mental capacity safeguards – intended to protect hundreds of thousands of vulnerable people – will hand care home managers and private hospitals far too much power, the government has been warned.”

Mental capacity changes give care homes too much power, critics say


Twitter Chat

3NDWG1

The 3 Nations Dementia Working Group Twitter chat restarted after the Christmas break.

It starts from 8pm GMT this Wednesday evening.

Feel free to join in using the hashtag #ask3NDWG

 


Videos

Peter Berry’s 81st Weekly YouTube Video

Stephen Tamblin’s 36th Weekly Facebook Video

You can also catch Stephen’s 6th YouTube video

Janice Swinks Facebook Video

Betsy e Wurzel’s Caregivers Facebook Video


Blog

“We have a system which has committed all its funding in total ignorance of dementia, in a society which fears dementia above every other disease, and which seems unable to tear itself away from ‘what we’ve always done’.”

George Rook’s blog titled Visions that hide reality



 

Sunday Musings – 13 January 2019

On Monday we finally  had the Long Term NHS Plan published with a mythical extra £20bn for the NHS.

By Thursday:

Government cuts real terms NHS spending, but boosts cash

Can’t wait to see the promises in the long awaited Green Paper on Social Care, which has no chance of being enacted in this Parliament.

Smoke and mirrors you might say to detract from the damming UN report from Sir Philip Alston.

On a more positive note, the 13 commitments to the Sheffield Dementia Strategy were released to the media this week.

On Thursday, at a public meeting of the Sheffield Clinical Commissioning Group, Governing Body, Tim Moorhead the head of the CCG, Kath Horner chair of Sheffield Dementia Action Alliance, Nicola Shearston from Sheffield City Council and myself all stated the importance of the new strategy and the need for an integrated pathway involving all stakeholders in Sheffield.


3NDWG1

The 3 Nations Dementia Working Group Twitter chat restarted after the Christmas break this week with a chat about “Dementia as a Disability”.

It starts from 8pm GMT on a Wednesday evening.

Feel free to join in using the hashtag #ask3NDWG

Fellow blogger Gill rights about Wednesday’s subject today in her blog :

Dementia: a disability?


Videos

Peter Berry’s 80th Weekly YouTube Video

Stephen Tamblin’s 35th Weekly Facebook Video

You can also catch Stephen’s 7th YouTube video


Blog

“I can imagine it is very hard to be friends with someone who is losing their mind. Hard to be friends with someone who one minute makes sense, and the next may be babbling incoherently.”

Minna’s blog titled Solitary confinement in the New Year





 

Sunday Musings – 06 January 2019

It’s the first Sunday Musings of 2019 so Happy New Year Everyone.

Tomorrow sees the launch of the Long Term NHS Plan.

A small amount of information about what will be included was released yesterday and the media, as usual have gone into overdrive, interviewing so called experts before the 100 or so page document has even been released and they have sight of what the detail of the plan actually is.

The reporting full of doom and what hasn’t been announced, without having seen the plan.

The devil as always is in the detail, facts not fake news.

It will be interesting to see how much of the feedback that was given at the forums including the one in London that I attended, influenced the content of the plan.

The other news was that the Government is halting the roll out of Universal Credit. They will still move 10,000 people onto it but monitor the impact, so hopefully there will be some positive change.

The idea of merging 6 benefits into one, may make sense, but the way Universal Credit has been implemented certainly does not make sense.


Videos

Peter Berry’s 79th Weekly YouTube Video

Stephen Tamblin’s 34th Weekly Facebook Video

You can also catch Stephen’s 6th YouTube video


Blog

“The research aimed to show how older people from different household types acquired food,  what food they bought and the people and places they acquired it from. The study was funded by the Food Standards Agency and the Economic and Social Research Council to explore the resilience of older people within the UK food system.”

Raymond Duffy’s blog titled The Importance of Food Shopping

Sunday Musings – 23 December 2018

Christmas is coming, the fat cats are getting fatter and everything has changed but nothing has changed.

It’s the season of good will to all men and women yet there will be great disparity between the haves and the have nots.

People in their cosy homes with family all around and those that are homeless or have no family to spend with on Christmas day.

The carers who empower people living with Dementia and other chronic diseases to live their lives at home.

The carers who have no support, who do their best not just at Christmas but all year round without a break or the support of family and friends at times to the detriment of their own health.

Where is the community spirit, respect for the older and more disadvantaged.

It’s all lost in a divisive society about me, me, me.

Pick up the phone, knock on a door, do something for someone else.

Spare a thought for those less well off this Christmas.


Videos

Peter Berry’s 77th Weekly Video

Stephen Tamblin’s 32nd Weekly Facebook Video is here

You can also catch Stephen’s 6th video on YouTube


Blog

“If you know someone caring for someone else this Christmas, offer to give them a break. Look after their loved one for a few hours so they too can go and enjoy the festivities. They may just need time to shop, time to wander walk round the shops, time to wrap parcels in peace or do a bit of cooking, or they may just need time to simply be by themselves.”

Wendy Mitchell’s blog titled Thinking of those who Care at Christmas……