Category: Research

Technology Research

Recently I have done two pieces of research about technology and Dementia.

The first was done using online video to look at a “Dementia Friendly” version of Alexa.

Whilst it is true that you can set reminders with Alexa, I use my phone and memory clock.

It can be the case that after the reminder you forget to do whatever it is, so one suggestion was that Alexa would ask you if you had done the task say 20 minutes later.

Another suggestion was that if say you had a fall at home and couldn’t get to a phone you could get Alexa to dial 999 and there would be a pre-recorded message or a text file that could be sent to the operator containing your contact details, medical conditions and medication.

This research is at an early stage, but will be interesting to see how it progresses.

The second piece of research was while I was at a Dementia Diaries meet up in Birmingham.

Amanda Lazar, Assistant Professor in the College of Information Studies in Human-Computer Interaction and Health Informatics at the University of Maryland USA, was at the meet up to learn more about Dementia Diaries for her research into Technology and Dementia.

Amanda would spend the two days taking part in sessions discussing Dementia Diaries and then doing recorded interviews with us all individually to find out what benefit we all have from doing the diaries and our hopes that it will spread a wider awareness of a life with Dementia.

The research project will not be completed until around September 2019, at which time we will receive a copy of the final research.

As you can see reader, two more examples of how easy it can be for someone to take part in research, not the Frankenstein impression that can come with research.

 

Part 5 -The RADAR Alzheimer’s Research Study.

Recently I was back at the Royal Hallamshire Hospital at the Clinical Research Facility for my 3 month appointment for the RADAR Alzheimer’s research study.

My Daughter Evelyn wasn’t with me today, she will be at the 6 month appointment.

As usual they had provided me with a taxi and I arrived in plenty of time for the appointment.

I had my bloods taken and answered the usual questions about how I had been.

Remember reader if I had any problems taking the Losartan, I am to stop immediately and I have phone numbers I can ring 24/7 for advice.

I had my blood pressure checked and the next 3 months tablets were dispensed.

They booked my taxi home and I went to the main entrance to wait for my lift home.

All in all it took about 30 minutes, another example of how easy it is to take part in research.

The University of Sheffield’s Dementia Futures 2018 Conference

On Tuesday, I went with other members of the South Yorkshire Dementia Research Advisory Group to the Dementia Futures conference at Sheffield Institute of Translational Neuroscience.

SITRAN

The conference, in it’s third year, is a challenge to PhD students at Sheffield University to present their Dementia research in a non-academic way, so that professionals and people living with Dementia can understand their presentations.

It was supported by the Alzheimer’s Society and the Medicine, Dentistry & Health Research Staff Association (MDHRSA).

David Reid and Julie Simpson opened proceedings and kept things going throughout the day, plenty of humour in amongst the housekeeping and keeping things running smoothly during the day.

Sandra Baker, an Alzheimer’s Society Research Network Volunteer also spoke about her role with the society’s research efforts.

There were 13 students involved, 7 gave spoken/visual presentations and the other 6 produced posters about their work.

Some of the presentations and the posters were easier for me to understand than others but that is the way with Dementia reader,  we all have different experiences/challenges and we all didn’t have the same opinions of the presentations.

If you are one of the PhD students reader, take heart, they were all important examples of research and it will be interesting to see their conclusions at the advisory group.

As members of the research advisory group, we were asked to judge both types of presentations and we chose 1 poster and we had a tie for the best vocal/visual presentation.

The day was also an opportunity for me to introduce the new Dementia UK representative for Admiral Nurses to various people from the University, Alzheimer’s Society and others

Charlotte Harris, is developing Dementia UK services across our region and is interested in bringing Admiral Nurses to Sheffield, which would form one part of post-diagnosis support in Sheffield for people diagnosed with Dementia and their carer/family.

All in all it’s was an enjoyable an informative day and the air-conditioning was a blessing on a hot day.