Dementia Diaries is a UK-wide project that brings together people’s diverse experiences of living with dementia as a series of audio diaries. It serves as a public record and a personal archive that documents the views, reflections and day-to-day lives of people living with dementia, with the aim of prompting dialogue and changing attitudes.

Who are we working with?

We are all part of the Dementia Engagement and Empowerment Project (DEEP). The Dementia Diaries initiative was designed by the non-profit communications agency On Our Radar (www.onourradar.org). It was launched by On Our Radar in January 2015 in partnership with Innovations in Dementia, Ownfone and Comic Relief, and was handed over to Innovations in Dementia in August 2016.

Phase 2 of the project is funded jointly by Comic Relief and BIG Lottery Fund.

A team from Leeds Beckett University was asked to evaluate the success of Dementia Diaries. A dementia-friendly summary of their findings is available here (pdf, opens in a new tab) or you can download the full report here (pdf, opens in a new tab).

The website provides the audio recording and a written transcript of each diary, you can volunteer to transcribe the audio diaries here

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This weeks Diaries include:

 WE ALL EXPERIENCE DEMENTIA IN OUR OWN UNIQUE WAY

JACQUI TALKS ABOUT THE YEAR SINCE HER FIRST DEMENTIA DIARY

STEPHEN REFLECTS ON THE BBC COUNTRYFILE PROGRAMME

PAUL TALKS ABOUT THE DEEP MEETING IN MANCHESTER

AGNES TALKS ABOUT HER PROBLEMS WITH SELF-DIRECTED SUPPORT.

JACQUI IS PLEASED ABOUT SEEING HER CONSULTANT.

STEPHEN LOOKING FORWARD TO THE CHANGES SPRING WILL BRING.

A GROUP DIARY HERE – THE GREAT CAMDEN MINDS TALKING ABOUT TECHNOLOGY AND EATING CAKE.

AGNES HAD A GREAT MEETING WITH DEMENTIA ENQUIRERS.

THE HAPPY TANDEMER (MHARI) TALKS ABOUT THE ZOOM MEETING SHE TOOK PART IN – FEELING BRAVE!

RAE READS A TOUCHING POEM.

CAROL REFLECTS ON THE ROLE OF FACILITATORS IN DEEP GROUPS.

AGNES REFLECTS ON WHAT MAKES DEMENTIA ENQUIRERS MEETINGS WORK SO WELL.

RAE IS BOUNCING ROUND THE HOUSE…….

THE HAPPY TANDEMER (MHARI) TALKS ABOUT THE ZOOM MEETING SHE TOOK PART IN – FEELING BRAVE!

MELVYN IS CONFIDENT THE ARRIVAL OF SPRING WILL LIFT HIS SPIRITS.

AGNES REFLECTS ON THE HISTORY OF ACTIVISM IN SCOTLAND, AND ENCOURAGES OTHERS TO SEEK OUT PEER SUPPORT.

MELVYN ‘S MESSAGE ABOUT KNIFE CRIME AND THE NZ MASSACRE

CAROL TALKS ABOUT MAKING DECISIONS FOR THE END OF LIFE.

RAE MISSES HER MUM, WHO PASSED AWAY A YEAR AGO.

AGNES TALKS ABOUT THE IMPORTANCE OF ADVENTURE WITH DEMENTIA. FEELING BLESSED.

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Note for Professionals

You can use these Diaries as part of your Dementia Training.

As a courtesy, please email Rachel Niblock at Niblock@myid.org.uk to let her know that you will be using some of the Diaries, it helps when applying for funding in the future.

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Dementia Diaries is a UK-wide project that brings together people’s diverse experiences of living with dementia as a series of audio diaries. It serves as a public record and a personal archive that documents the views, reflections and day-to-day lives of people living with dementia, with the aim of prompting dialogue and changing attitudes.

Who are we working with?

We are all part of the Dementia Engagement and Empowerment Project (DEEP). The Dementia Diaries initiative was designed by the non-profit communications agency On Our Radar (www.onourradar.org). It was launched by On Our Radar in January 2015 in partnership with Innovations in Dementia, Ownfone and Comic Relief, and was handed over to Innovations in Dementia in August 2016.

Phase 2 of the project is funded jointly by Comic Relief and BIG Lottery Fund.

A team from Leeds Beckett University was asked to evaluate the success of Dementia Diaries. A dementia-friendly summary of their findings is available here (pdf, opens in a new tab) or you can download the full report here (pdf, opens in a new tab).

The website provides the audio recording and a written transcript of each diary, you can volunteer to transcribe the audio diaries here

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This weeks Diaries include:

JACQUI IS IN HIGH SPIRITS AFTER HER TRIP TO BELFAST

STEPHEN WONDERS IF HE IS OVERDOING IT

DORY IS FEELING USED

LARRY READS TWO OF HIS POEMS THAT TOUCH ON THE SUBJECT OF LONELINESS

JULES’ THOUGHTS ON WENDY’S BOOK

JACQUI IS PLEASED ABOUT HER DAY

STEPHEN LOOKS BACK ON MEETING TONY ROBINSON

AGNES LOOKS FORWARD TO A BUSY SUNDAY

TRACEY’S THOUGHTS ON WENDY’S BOOK

PAUL’S THOUGHTS ON WENDY’S BOOK

RAE IS UPBEAT, AGAINST THE ODDS

MELVYN HAS BEEN READING THE DEEP NEWSLETTER

LARRY RECOUNTS HIS EXPERIENCE WITH PIP

JACQUI HAD A GREAT DAY AT THE MUSEUM IN BELFAST

GEORGE MUSES ON POSSIBLE NAMES FOR DEEP GROUPS

DORY’S THOUGHTS ON WENDY’S BOOK

MELVYN LOOKS BACK TO THE POEM HE WROTE FOLLOWING THE LOSS OF HIS DOG MAX

JACQUI IS GETTING READY TO BOARD A PLANE

RON CALLS FOR ACTION TO SECURE THE RIGHTS OF PEOPLE WITH DEMENTIA.

AGNES IS READY TO TALK ABOUT LIVING WELL WITH DEMENTIA

TRACEY WARNS OF A PHONE SCAM

GEORGE’S THOUGHTS ON WENDY’S BOOK.

JACQUI TELLS HOW SHE STRUGGLED A BIT AT BELFAST RAILWAY STATION

LARRY READS TWO POEMS ABOUT FRIENDSHIP

HOWARD TALKS ABOUT THE OPPORTUNITIES AFFORDED BY TECHNOLOGY

HOWARD SPEAKS ABOUT INTERNATIONAL WOMEN’S DAY

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Note for Professionals

You can use these Diaries as part of your Dementia Training.

As a courtesy, please email Rachel Niblock at Niblock@myid.org.uk to let her know that you will be using some of the Diaries, it helps when applying for funding in the future.

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Dementia Diaries is a UK-wide project that brings together people’s diverse experiences of living with dementia as a series of audio diaries. It serves as a public record and a personal archive that documents the views, reflections and day-to-day lives of people living with dementia, with the aim of prompting dialogue and changing attitudes.

Who are we working with?

We are all part of the Dementia Engagement and Empowerment Project (DEEP). The Dementia Diaries initiative was designed by the non-profit communications agency On Our Radar (www.onourradar.org). It was launched by On Our Radar in January 2015 in partnership with Innovations in Dementia, Ownfone and Comic Relief, and was handed over to Innovations in Dementia in August 2016.

Phase 2 of the project is funded jointly by Comic Relief and BIG Lottery Fund.

A team from Leeds Beckett University was asked to evaluate the success of Dementia Diaries. A dementia-friendly summary of their findings is available here (pdf, opens in a new tab) or you can download the full report here (pdf, opens in a new tab).

The website provides the audio recording and a written transcript of each diary, you can volunteer to transcribe the audio diaries here

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This weeks Diaries include:

AGNES LOOKS FORWARD TO BEING INTERVIEWED ABOUT THE HISTORY OF DEMENTIA ADVOCACY IN SCOTLAND

TOMMY REFLECTS ON WHAT IS NEEDED TO IMPROVE WORK TOWARDS BETTER TRANSPORT

PAUL SETS OUT HIS DREAMS OF LIVERPOOL WINNING THE PREMIERSHIP

STEPHEN REFLECTS ON HIS WEEK, INCLUDING A VISIT TO THE FIRE SERVICE

PAUL REFLECTS ON A GOOD DAY’S WORK ON TRANSPORT AND A GOOD SOCIAL TOO!

….AT THE OTHER END OF THE DAY PAUL IS TIRED BUT HAPPY WITH THE HARD WORK DONE IN MANCHESTER

AGNES IS OFF TO MEET PHILLY AND KUMIKO, WHO HAS COME FROM JAPAN TO LISTEN AND SHARE

AGNES IS TYING A BIG RIBBON BOW AROUND HER MEMORIES OF 13 YEARS OF ACTIVISM

JULES IS SADDENED AT THE LOSS OF HER DRIVING LICENCE.

JULES IS FEELING CROSS THAT THE DECISION TO STOP DRIVING WAS TAKEN WITHOUT HER

RAE EMERGES FROM BENEATH THE DUVET WITH A JOKE.

AGNES REFLECTS ON THE IMPORTANCE LETTING PEOPLE KNOW THE SUPPORT SHE NEEDS

WENDY PONDERS AN INTERESTING ANALOGY FOR BREXIT

WE NEED TO TALK ABOUT DEMENTIA, BUT NOT AT THE EXPENSE OF THE GOOD MOMENTS

WENDY SAYS ‘NEVER GIVE UP ON YOURSELVES’

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Note for Professionals

You can use these Diaries as part of your Dementia Training.

As a courtesy, please email Rachel Niblock at Niblock@myid.org.uk to let her know that you will be using some of the Diaries, it helps when applying for funding in the future.

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Dementia Diaries is a UK-wide project that brings together people’s diverse experiences of living with dementia as a series of audio diaries. It serves as a public record and a personal archive that documents the views, reflections and day-to-day lives of people living with dementia, with the aim of prompting dialogue and changing attitudes.

Who are we working with?

We are all part of the Dementia Engagement and Empowerment Project (DEEP). The Dementia Diaries initiative was designed by the non-profit communications agency On Our Radar (www.onourradar.org). It was launched by On Our Radar in January 2015 in partnership with Innovations in Dementia, Ownfone and Comic Relief, and was handed over to Innovations in Dementia in August 2016.

Phase 2 of the project is funded jointly by Comic Relief and BIG Lottery Fund.

A team from Leeds Beckett University was asked to evaluate the success of Dementia Diaries. A dementia-friendly summary of their findings is available here (pdf, opens in a new tab) or you can download the full report here (pdf, opens in a new tab).

The website provides the audio recording and a written transcript of each diary, you can volunteer to transcribe the audio diaries here

This weeks Diaries include:

MELVYN FEELS SUCCESSIVE GOVERNMENTS HAVE NEGLECTED THE NHS

JACQUI WONDERS IF THE NHS DIABETES PREVENTION PROGRAMME COULD BE A BIT MORE ACCESSIBLE

MELVYN HAS SOME THOUGHTS ABOUT THE MPS WHO RECENTLY LEFT THE LABOUR PARTY.

NIGEL PAYS TRIBUTE TO THE WOMEN HE HAS WORKED BESIDE SINCE HIS DIAGNOSIS

STEPHEN HAS A GREAT DAY WORKING WITH THE BBC ON COUNTRYFILE

AGNES WONDERS OF ANYONE HAS ANY GOOD TIPS FOR EFFECTIVE REMINDERS

JACKIE HAS A GREAT DAY WITH HER NEW PA AT THE HAT MUSEUM, DESPITE FORGETTING HER COAT AND WALKER.

MELVYN ARGUES FOR MORE CONSISTENCY OF CARE

JACKIE WONDERS IF THE NHS DIABETES PREVENTION PROGRAMME COULD BE A BIT MORE ACCESSIBLE

MELVYN TALKS ABOUT THE NEED FOR MORE TRAINING AND SUPPORT FOR CARE HOME STAFF

AGNES BAKES SCONES WITH THE HELP OF TALKING SCALES AND SCOTTISH WAR BLIND

AGNES NEEDS HELP TO FIND A CARE PROVIDER THAT UNDERSTANDS TECHNOLOGY

TRACEY DESCRIBES A GREAT COUPLE OF DAYS WORKING IN LONDON

PAUL TALKS ABOUT TESTING A NEW APP AT A DEEP MEETING

LISTEN TO RAE’S TRULY BEAUTIFUL POEM FOR HER AUNTY SUE

JULES REPORTS ON A GREAT DEEP MEETING IN LONDON – SHE’S NOT SO KEEN ON THAT LONDON THOUGH…

TRACEY WAS AT THE SAME MEETING WITH JULES, AND TALKS ABOUT HOW APHASIA

STEPHEN ANNOUNCES THE BROADCAST DATE OF THE EDITION OF COUNTRYFILE HE WORKED ON.

JACQUI HAS A GREAT DAY WITH HER NEW PA AT THE HAT MUSEUM, DESPITE FORGETTING HER COAT AND WALKER.

STEPHEN ANNOUNCES THE BROADCAST DATE OF THE EDITION OF COUNTRYFILE HE WORKED ON.

DORY’S CABIN FEVER IS OUTWEIGHED BY NEWS HER ARTICLE IS ABOUT TO BE PUBLISHED!

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Note for Professionals

You can use these Diaries as part of your Dementia Training.

As a courtesy, please email Rachel Niblock at Niblock@myid.org.uk to let her know that you will be using some of the Diaries.

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A selection of this weeks Diaries

THE DIFFERENCE GOOD SUPPORT MAKES

‘IT WAS WONDERFUL JUST TO FEEL NORMAL FOR AN HOUR TO DO MY SHOPPING’

AGNES HAS BEEN INTRODUCED TO ALEXA – WHAT A SUCCESS!

RAY REPORTING FROM SPRINGBOARD, ‘LET’S BE HEARD’ AND THEY’VE HAD A TEA DANCE TODAY!

WHAT DO YOU DO WITH SECRETS WHEN YOU ARE LIVING WITH DEMENTIA??

A TRIBUTE TO SOMEBODY WHO SEEMS TO COME ALONG AT JUST THE RIGHT TIME

THE HAPPY TANDEMER IS WALKING A BIT LIKE JOHN WAYNE AFTER A FANTASTIC LONG TANDEM RIDE WITH FRIENDS

MELVYN NEEDS YOUR THOUGHTS ABOUT WHAT WE CAN ACTUALLY DO ABOUT THE NHS WHO CALLOUSLY WIPE PEOPLE OFF THIS EARTH THROUGH LACK OF CARE

CAROL SHARES HER EXPERIENCE OF AN AUDIOLOGY APPOINTMENT

‘THEY SHOULD GIVE YOU THIS WEATHER ON THE NHS IF YOU HAVE DEMENTIA’ SAYS JIM FROM TENERIFE!

THE HAPPY WANDERERS ARE DUE TO BE FILMED BY COMIC RELIEF BUT STEPHEN HAS A CHEST INFECTION, WHICH IS NOT GOOD WHEN YOU HAVE COPD.

‘YOU DON’T MEET OUR ELIGIBILITY CRITEREA. LET ME REFER YOU TO ANOTHER SERVICE WHO WILL TELL YOU THE SAME’

WHAT LIFE’S REALLY LIKE, LIVING IN DEMENTIALAND

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Note for Professionals

You can use these Diaries as part of your Dementia Training.

As a courtesy, please email Rachel Niblock at Niblock@myid.org.uk to let her know that you will be using some of the Diaries.

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