After the first 4 years of my journey with Dementia, 2018 marked the beginning of change in my journey with Dementia.
As new year dawned, I was still in that dark place following my diagnosis of Alzheimer’s and Frontotemporal Dementia in March 2017, without the support of the NHS or local Authorities
By the end of March 2018, with the help of the A Good Life with Dementia course ,I had begun to re-engage with life and had begun to reinvent myself.
By the end of June, I had climbed out of the metaphorical Dark Hole and begun to leave the black hole behind.
This article will be gradually updated over time.
This page bring together the articles that form the first 4 years of my own personal story from around January 2014 when I first started to notice changes in my cognitive abilities, through my diagnosis to the end of 2017:
As you will have read, they were challenging times, not helped by a system severely lacking in funding, support, rehabilitation, services and a lack of will to uphold our rights.
You may say reader, well that’s just his experience, the exception not the rule.
I can confirm that my experiences are not unique, that the more people I talk to the more common my experiences are, not just in the UK but worldwide.
This has led me to try to advocate for change in my own small way and to raise awareness of the challenges that a diagnosis of Dementia brings.
My experiences over the last 4 years reader, were generally negative
The Journey Begins…
Getting A Diagnosis
Stepping Off a Cliff Into a Dark Hole
but as you will see, things changed in 2018.