Category: 2018

In the News – September 2018

New BMA Guidance

British Medical Association wants to allow doctors to starve Mentally Disabled patients to death

New draft guidance from the BMA: will enable doctors to dehydrate and sedate to death large numbers of non-dying patients with dementia, Stroke or brain damage

Is the BMA introducing back door Euthanasia

Leaked BMA guidance gives medics permission to play God

BMA: “Let doctors euthanise Dementia Patients”


Antipsychotics

Dangerous antipsychotic medicine being over-prescribed for elderly patients

Antipsychotic drugs are rarely effective in calming Dementia patients


DWP

Humiliating Benefits assessments must end after woman forced to crawl up DWP stairs

The DWP just sunk to it’s most disgraceful moment to date

DWP’s secret death reviews: Investigation into deaths doubles in two years

The DWP had been forced to admit people are dying under Universal Credit

Universal Credits hidden cuts push Disabled people into poverty


Rights

Social and Economic Rights are Human Rights and we need to start taking them seriously

Medical Consent, What do human rights have to do with it?

Bill on Mental Capacity and Liberty Protection, will take rights backwards

Are Human Rights only for the rich?

An Australian Perspective on UN disability development

Stop Dehumanising the Disabled


Politics

Labour Conference: Marsha Da Cordova calls for an alternative to Universal Credit

Disability Labour Co-Chair: It’s not Brexit that I fear, It’s the Tory Government

When it comes to the mistreatment of people, the Tories really are the “Nasty” Party

The behaviour of Julia Hartley-Brewer “caused considerable distress” to people at the Labour Party conference, including disabled party members with autism and anxiety conditions.

£1bn in unpalatable county council cuts ahead in

Plans for new Scottish Disability Support Set Out

Global care crisis set to affect 2.3 billion people warns UN labour agency


NHS

NHS should expand social prescribing, says Health secretary

A&E’s overcrowded and understaffed


Abuse

Abuse taking place in 99% of care homes, amid chronic underfunding, survey shows

Sydney nursing home worker spared jail over attack on Dementia patient


Other News

Unique Chorus gives voice to people with Alzheimer’s

I’m tired of being called just a carer, Looking after people is a proper job

In praise of do-gooders and those that care

I had Alzheimer’s, but wasn’t ready to retire

Total chaos as Sussex care home closed down

My time, 40% of carers have not had a break in over a year

Early Dementia detection benefits the person, state and taxpayer

I’ve gone to a place I could never have dreamed of – Inspirational campaigner who has Alzheimer’s disease

Dementia risk for most people in polluted areas is 40 per cent higher, Scientists warn

Ministers drop plans for parallel process on working age social care 

My life isn’t over just because I have Dementia, stop treating me like it is

The Other Place Review: Rage, Confusion, Compassion in a Dementia Drama

World Alzheimer’s Day to be celebrated with launch of new calendar

Dementia symptoms get better in the summer and autumn, scientists find

Enabled, not disabled, candidates run to raise disability awareness

Are we really on the brink of a cure for Alzheimer’s

World Alzheimer’s Day celebrated with launch of new calendar



 

Blogs and Other – August 2018

A selection of non-media articles from last month:

A Letter to Dementia…….

What do we want? We want ACTION!

Mum’s First Week Back at Home

Is sharing a diagnosis of dementia brave?

Dementia Truth Inquiry Review of Evidence

 

 

Decision Time: Does Mum Stay Home?

Implosion

Listen to the Silence…….Poem….

In The News – August 2018

Widow, conference address ‘misunderstood’ dementia that can mimic emotional problems

Government repeatedly ignores its own advisers on ‘toxic’ train access

Apology over ‘shameful’ mental health ward scandal

MPs launch probe into enforcement of Equality Act

County council crisis sparks fears for service-users

Charities help government with cover-up over blue badge changes

Supreme Court ruling ‘risks bringing in euthanasia by the back door’

Too many carers feel alone, invisible and unsupported

Hospital secures court orders to stop two patients with dementia from leaving

Woman, 87, with dementia forced to sleep outside after being made homeless

We need more than goodwill when we write about disability

Reasonable Adjustments, Public Building access, the 6 inch gap ans the Rejected Amendment

Elderly men “Escape” Nursing Home to go to Heavy Metal Festival

My early onset dementia is a life sentence but I’m happier than I’ve ever been

Dementia rates higher among black people, new study finds

Fines could be introduced to deal with Dublin Bus passengers who refuse to fold up buggies for wheelchair users

UKIP suspends three members over socialist bookshop attack

Experts rank non-drug therapies highest for managing Alzheimer’s symptoms

Dementia UK director slams ‘fractured’ care system – ‘the government has SO much to do’

Specific biomarkers may help to distinguish Parkinson’s Dementia from Dementia with Lewy Bodies

Train company faces calls to rip up scooter policy after latest ‘shameful’ episode

UN’s ‘human catastrophe’ rights expert to deliver high-profile UK lecture

DWP refuses to pay £125 to discover number of disabled people in full-time jobs

DWP figures provide fresh evidence to explain PIP claim rejections

Legal action threat over wheelchair service’s ‘bullying, delays and poor service’

Austerity kills: this week’s figures show its devastating toll

Learning To Live Well With Dementia

Derbyshire dementia care home postcard project ‘spirals’

The Illness Is Bad Enough. The Hospital May Be Even Worse.

Seeking Redemption: The Rage of Alzheimer’s

MPs launch inquiry into care discrimination faced by LGBT service-users

Elderly should be housed in luxury developments with spas to keep them out of care homes

Dementia: Alzheimer’s Is Only One of Many Types

Poor hospital discharge process puts patients ‘at risk’

Potential residents have had their first look at the new Mercy Place aged care, complete with pub, cafe, grocery store and more

Don’t write us off: People with dementia press for more rights — and respect

When Health Care Ignores Your Goals

DWP repeatedly breaches FoI laws ‘in bid to hide secret jobcentre reports’

Deaths and hospital admissions follow short-notice closure of Leonard Cheshire Home

The young man with brain tumours told he is fit to work despite being unable to leave the house alone

Don’t be afraid. Don’t try to hide. Ask for help.

New report raises human rights concerns for elderly people held in secure dementia units

Exclusive: Dementia nursing is not a backwater career, states clinical director of charity

Could different cultures teach us something about Dementia?

Let’s open dementia cafes to help keep people active

‘He passed peacefully just after England had sealed victory’: The heartwarming letter from listener to Test Match Special after 83-year-old cricket fan’s last moments were spent listening to Chris Woakes’s century

Tories spend £200 Million fighting to stop sick and disabled people getting benefits

Family’s horror as dementia sufferer, 89, is placed in bed 300 miles from home

I’ve been told to wait three years for a wheelchair that ‘can go outside’

Dementia patients in hospital ‘suffering in silence’, according to ‘deeply troubling’ new research

Should we press-gang older people into having fun?

Blogs and Other – August 2018

A selection of non-media articles from last month:

A Letter to Dementia…….

What do we want? We want ACTION!

Mum’s First Week Back at Home

Is sharing a diagnosis of dementia brave?

Dementia Truth Inquiry Review of Evidence

Beyond the Medical Model: The Culture Change Revolution in Long-Term Care

The social model of disability

Dementia, rights, and the social model of disability

Decision Time: Does Mum Stay Home?

Implosion

Listen to the Silence…….Poem….

In the News – July 2018

My mother favours assisted dying. Now she has dementia I’m not sure I agree

How design is helping people with dementia find their way around

BBC The Truth About Dementia 2017 – Living with Dementia, Chris’s Story

I’m ageing disgracefully. Let’s hope I’m even more of a laughing stock

The DWP drove through a controversial welfare reform off the back of some very scant evidence

‘It made me depressed’: how poor housing costs the NHS £1.4bn a year

‘It’s Almost Like a Ghost Town.’ Most Nursing Homes Overstated Staffing for Years

Teenage volunteers make dementia residents ‘feel alive’

Disabled people could slip through net in universal credit move, says charity

Charities fail to tell MPs about clauses that ‘prevent them attacking McVey and DWP’

Adult social care services on brink of collapse, survey shows

Nearly 8 million people providing care for family members without pay

The NHS social contract has been broken – by children refusing to look after their own parents 

We baby boomers are an easy target

‘Granny dumping’ case to be heard as businessman accused of abandoning American, 76, to get him free care

DWP silence over ‘thousands of ESA claims lost in IT black hole’

Rewatching old football matches helps dementia and mental health, medical experts say

Civil Society Forum – Day 2 Update

McVey’s U-turn means DWP will pay at least £100 million more to disabled claimants

DWP is asked why ‘not fit for work’ universal credit claimants are being sanctioned

Patient watchdog ‘very concerned’ by leaked dementia care report

Watchdog’s ‘issues of concern’ over regulator’s treatment of PIP complaints

While Brexit dominates, the crisis in social care is deepening

The UK government’s hypocrisy in hosting a global ‘disability summit’ is about to be exposed

Four opposition parties demand DWP answers over WCA deaths ‘cover-up’

‘I’ve lost my man to dementia’

Boy, 4, befriends Nottingham dementia patient, 91

Painkiller used for dementia ‘could make symptoms worse’

The care home residents proving it’s never too late to learn a new language

Figures finally show how government slashed spending on rail access scheme

Doctor in Netherlands ‘asked family to hold down euthanasia patient’

Global Disability Summit: DPOs from global south call for new beginning

Potential Alzheimer’s disease treatment fails trial

UN Calls Out Australia For Allowing Forced Sterilisation Of Women With Disabilities

Taxi ‘hero’ praised for looking after woman with dementia

Global Disability Summit: Anger over Mordaunt’s bid to redefine inclusive education

Britain Split on Whether Human Rights Abuse is a Problem

Women’s Alzheimer’s test needed as superior verbal skills mask onset of the disease

Ten minutes of social interaction improves wellbeing in dementia care

Should we force the terminally ill to travel abroad and pay £10,000 for a painless death?

Global Disability Summit: Mordaunt retreats from UK’s ‘global leader on rights’ claims

Holidaying MPs have kicked the social care crisis down the road – and that’s a scandal

Woman killed herself after series of NHS trust errors, jury finds

Local Government Authority (LGA) launches it’s own green paper on social care – Alzheimer’s Society comments

Health Secretary accused of ignoring dementia 

Office for Disability Issues ‘taking no action’ to halt closure of DPOs

 

 

In The News – June 2018

In the news this month:

Free app helps Dementia suffers find their way home

Care home to put on Dementia support groups

Why all care homes need sensory stimulation

We’re told we are a burden. No wonder disabled people fear assisted suicide

New service for young Dementia patients in Suffolk

Anger as wheelchair users left unable to ride trains on major route

My son has Dementia at 12 years old

New data confirms postcode lottery for old

Herbert protocol arrives in north east Scotland to help people with Dementia

Bridgewater woman determined not to let early onset Dementia stop her adventures

People with long term conditions, shouldn’t be forced to pay for prescriptions

Dementia in your 40’s – Life isn’t over, it just changes

Since my husbands diagnosis with Kennedy’s disease, Our income has plummeted

There’s comedy as well as tragedy in Dementia

Dementia friendly park in Stirling is Scottish first

Disabled people losing their benefits a scandal

France starts work on revolutionary Alzheimer’s village where patients roam almost free

Memory interrupted

Do we have a right to a good death

Can technology help Dementia patients

Non drug approach leads to massive decrease in BPSD

In a wheelchair and want your benefits? You’ll need to take the stairs

Dementia Dogs at the ready for new patients and carers

Four years after my Father died, we’ve reached a milestone in Dementia care

Thousands in Shropshire unaware they have Dementia

Tireless Dementia activist awarded the British Empire Medal

Councils tighten reigns on personalised care

Living with a Dad who has Dementia

Sainsbury’s trials relaxed checkout lanes

Inquiry into Dementia and Disability launched by APPG on Dementia

Elderly social care should be free at point of need

Carers don’t need to be paid compliments, they just need to be paid

Dementia checks from 40 to be carried out by GP’s under plan to tackle disease

Why won’t ministers come clean about the impact of cuts on the disabled

Alzheimer’s Society says new dementia guidelines is just the start

Lewy Body Dementia: One couple’s story of caregiving

New Dementia briefing suggest that behaviour that challenges can be the result of unmet needs

How patients with Alzheimer’s disease hide their forgetfulness

Staff caring for Dementia patients must be trained in understanding their identity

Fiona Phillips has revealed she feels guilt of not seeking justice for Dad who died after being over-medicated in Hospital

UKIM Briefing – Westminster Hall Debate -Government’s response to UN Committee on the Rights of Persons with Disabilities report

Stigma and negativity has effect on people with Dementia specialist says

Dealing with dementia: Alzheimer’s New Zealand provides support and education

New fund to help local charities implement Carers (Scotland) Act 2016

Incredibly moving moment Sky News host brought to tears during touching dementia interview

Simon Pegg lends his support to new Dementia awareness film

REAL LIFE: ‘Dementia is not a life sentence’

Fundraiser aims to cycle 330 miles for dementia charity

Blue crockery increases appetite of Ysbyty Gwynedd patients affected by Dementia

‘It was very scary and isolating’: The Veronicas discuss the shock of learning their mother Colleen has dementia after four years of misdiagnosis

Achieving the WHO’s Global Action Plan for Dementia

Stigma and negativity has effects on people with dementia says specialist

Dogs helping those with dementia look for new home

Baroness Thomas: We were world leaders in how we treated disabled people, but the crown has slipped

Specialist shares how to help local dementia patients

Access to care for dementia must improve, says Owen

College students work in community with dementia charity

I am not paid or induced in any way to mention any articles and I do not necessarily support any comments, language or the use of specific words.

I haven’t included any articles about cures, as I feel they are misleading. Apart from the current medications, all recent clinical trials seem to fail by stage 3.

I have also excluded the eat this, drink that, do this to reverse Dementia type of articles. We are all different, so again false hopes and impressions do not help.

UN: spend an extra £5tn by 2030 to tackle global ‘care crisis’

May 2018 July 2018

 

 

In The News – May 2018

More than 50,000 patients avoidably admitted

Rail staff told not to help disabled passengers board if it makes train late

How to square the circle of social care funding

Are Dementia friendly communities the answer to isolation and stigma

Leading campaigner backs new Health Board Dementia Strategy

Survey of disabled members funds unacceptable discrimination within Labour party

Equality Watchdog considering legal action over rail access failures

Disabled people suffer unhelpful, exclusionary and abusive practices everyday

Dementia guidance launched to help rural people

A Dad with Alzheimer’s has been sectioned because a string of care homes say they can’t look after him

Ex-carer speaks candidly about how she copes with the Dementia that’s stealing her memories

Kamran Mallick: ‘I want to change the world for disabled people’

Dementia sufferers missing out on vital post-diagnosis support

Who are we to judge the lives that people with Dementia are living

Dementia write Wendy Mitchell tells Doctors to be positive

Explainer: how is frontotemporal dementia different and what are the warning signs?

Purpose built centre for Dementia

TUC Disabled Workers Conference: Government has created hostile environment for disabled people

TUC Disabled Workers Conference: UN convention must become part of UK law

Don’t call us sufferers, it makes us all lose hope

I am not paid or induced in any way to mention any articles and I do not necessarily support any comments, language or the use of specific words.

I haven’t included any articles about cures, as I feel they are misleading. Apart from the current medications, all recent clinical trials seem to fail by stage 3.

I have also excluded the eat this, drink that, do this to reverse Dementia type of articles. We are all different, so again false hopes and impressions do not help.

April 2018 June 2018

 

In The News – April 2018

Disabled people lose legal aid in 99% of benefit disputes

Disabled people struggle to afford food and heating

Dementia Patients restrained with controversial techniques

NHS hospitals fail to spot Dementia in more than a third of patients

Young boy diagnosed with Dementia loses ability to say first words

I am not paid or induced in any way to mention any articles and I do not necessarily support any comments, language or the use of specific words.

I haven’t included any articles about cures, as I feel they are misleading. Apart from the current medications, all recent clinical trials seem to fail by stage 3.

I have also excluded the eat this, drink that, do this to reverse Dementia type of articles. We are all different, so again false hopes and impressions do not help.

March 2018 May 2018

 

In The News – March 2018

Sex is a basic human right for elderly with Dementia

Wheelchair users in UK to be given enhanced rights for bus travel

When Yvonne got Dementia Sainsbury’s let her keep her job

The spark will ignite: How poetry helps engage people with Dementia

Loved ones care, Paying when you needn’t be

I am not paid or induced in any way to mention any articles and I do not necessarily support any comments, language or the use of specific words.

I haven’t included any articles about cures, as I feel they are misleading. Apart from the current medications, all recent clinical trials seem to fail by stage 3.

I have also excluded the eat this, drink that, do this to reverse Dementia type of articles. We are all different, so again false hopes and impressions do not help.

February 2018 April 2018

In The News – February 2018

US care homes over prescribing drugs for residents with Dementia

Mum has Dementia and now Dad’s dead she will have to sell her home

Designing a loved ones room in their Care/Nursing home

A Third of people with Dementia in England not receiving full care

Disability benefits assessors failing to meet Government’s quality standards

Dementia research must study care as well as I really hope he’s proud of me

I am not paid or induced in any way to mention any articles and I do not necessarily support any comments, language or the use of specific words.

I haven’t included any articles about cures, as I feel they are misleading. Apart from the current medications, all recent clinical trials seem to fail by stage 3.

I have also excluded the eat this, drink that, do this to reverse Dementia type of articles. We are all different, so again false hopes and impressions do not help.

January 2018 March 2018