Category: In The Blogs

In The Blogs – March 2019

THE VALUE OF BEING INVOLVED IN RESEARCH | ROADMAP

Social Care Workers in Scotland Put Up With Unfair Conditions

THE PRODIGAL SON IN DEMENTIALAND

Text Format – My Dementia Style

Dementia Friendly Communities

Staying proactive when all you want to do is sleep!

Dementia Friends sessions in schools

RECOGNISING CHRISTINE BRYDEN ON INTERNATIONAL WOMENS DAY

International Womens Day 2019

Fake news: lies, damned lies, and statistics

Do you want our money?

2019 presents more problems!

WHEN YOU SEE WHAT YOU EXPECT TO SEE IN DEMENTIALAND

Another day in the Surreal world…..

Care partner struggles alone without support of loved one’s adult children

Journeying through Dementia Designing Post Diagnostic Support with People with Dementia

How to…Reduce and Manage Delirium

Desperately Seeking a Good Care Home

Root And Branch Reform Of Social Care Needed

@TheKingsFund, @HealthFdn and @NuffieldTrust Warn of Urgent Need to Tackle NHS Workforce Crisis

Dementia Bereavement

Live Diary performance…….

Dementia in Australia

Both/And

CELEBRATING WRAD 2019

INVISIBLE, BY PAUL HITCHMOUGH

Finally…….Skydive Saturday happened…

THE PRESENT MOMENT IN DEMENTIALAND

20 questions to ask when someone living with dementia “resists” or “refuses” care

Young Dementia UK…….

The second day in London……..

Mr Kipling’s general practice



 

In The Blogs – February 2019

“She’s still in there somewhere!” Is she? Really?

Alzheimer’s from the Inside Out, By Dr Richard Taylor

Anticipatory Grief In Dementialand

Top 3 Considerations when initiating iPADs for Persons with Dementia ( PWD ) in Long Term Institutions in Singapore

Most caregivers of people with dementia are family members, and they need help

Our own Solitary Bubble……

Social Care in Crisis

Dementia Dos and Don’ts in hospitals

Altered Afternoon Relationships

People with dementia who get tired are sundowning? What a load of rubbish!

Big Stick PEOPLE And Little Stick People In Dementialand

5 Tips for Getting Started at Communicating Better

Does Brexit have a hand in my Pharmacy chaos…………?

Hyperacusis: what do we most need to know?

Paying unpaid carers

Fake news: lies, damned lies, and statistics

THE HUGE MISUNDERSTANDING IS THAT THE PERSON WITH DEMENTIA HAS NO UNDERSTANDING, BY NAOMI HIGUCHI

Lewy Bodies Dementia

Why I analyse my dementia…….

What the People Say…. Evaluating Speech & Language Therapy Groups for people with Dementia

The Dreaded Quiet week…..

Be A Dementia Friendly General Practice

Patients in Dementialand

Symptom Intensification from Grief

THE Complicated Dynamics of the Care Partnership in Dementialand

Caring in the Face of Physical Distress and Overwhelming Anxieties

Comfortable

ECT for Dementia by Dr. G. Allen Power

Dementia care partner mom investigated for having daughter help with care

The Good Law Project has warned legal challenge to the DHSC over serious shortage medicines protocol

Dementia Bereavement



 

 

 

 

 

 



 

In The Blogs – January 2019

2019

Diary thoughts with dementia

The Importance of Food Shopping

FALLING WITH SOMEONE IN DEMENTIALAND

The dreaded foggy day…….

BBC BLOGS – ABOUT THE BBC – PANORAMA – LIVING WITH DEMENTIA: CHRIS’S STORY

The Release of the NHS Long Term Plan

Solitary confinement in the New Year

Dementia: a disability?

Not bored, just stagnating……

Christmas – Ba Humbug.

Visions that hide reality

From medical appointment to new medication ……

Crash…

Occupational therapy- moving from too little, too late to right time, right place

Why are we deemed so worthy of so little….?

Do people still talk to you?

Psychiatric detention under the Mental Capacity Act 2005



 

 

 

 

In The Blogs – December 2018

A Post Diagnostic Resource by the Scottish Dementia Working Group “please don’t label me, I am more than my dementia”

The story of a cock and a bull

Mental Capacity (Amendment) Bill update

Fingers versus Voice……..

Cheese on Toast – or not coping

I’m Davy Crockett – Get Me Out Of Here

Doubting a diagnosis of dementia

An Alzheimer’s Christmas story

Wandering Around Trying to be Helpful In Dementialand

Our Services in Crisis………My rambling thoughts….

Tinnitus and other Auditory Hallucinations

Dementia: a solution

I Love You for What You ALMOST Are, Person-Centeredness.

Mo the Cat: Therapeutic Value of Pets for People with Dementia

Would I want my old life back?

When Should We Start Discussing Retirement?



 

In The Blogs – November 2018

Professional Questioning……

We Live in such a Tiny Bubble……..Poem

A Dr failing to understand Dementia, and the risk that poses

Dementia in the media…unsound and unbalanced

Inappropriate Prescribing: A Reminder

Post Code Lottery

“Roots to Occupation” by the Scottish Dementia Working Group @S_D_W_G

Doubting a diagnosis of Dementia

A response from Alistair Burns on the ‘Living Well’ debate…..

Rehabilitation for dementia: Evidence & Opportunities

Changing Relationships with my Daughters……

Rehabilitation: the future of Dementia care

#CarersRightsDay: We Need to Support an Increase in Carers Allowance Across the UK

In The News – November 2018

Butterfly Care Homes bring humanity to those living with Dementia

Dementia in Europe: a public health priority?

Too many Dementia patients prescribed potentially inappropriate drugs, study finds

Sheffield widower says ‘callous’ health bosses took wife’s dementia care away just weeks before she died Read more at: https://www.thestar.co.uk/news/sheffield-widower-says-callous-health-bosses-took-wife-s-dementia-care-away-just-weeks-before-she-died-1-9470413

Family’s lonely fight over dementia hospital death

Petition raising fears over ‘freedom deprivation bill’ tops 100,000 signatures

How sport can benefit people with dementia

Why prescribing playlists for people with dementia is on the money

Dementia patients should be prescribed ‘personal playlists’ to trigger happy memories

People With Dementia Like Me Need Help To Stay In Work

Companies running ‘inadequate’ UK care homes make £113m profit

UN expert tells of disabled people’s ‘horrendous’ evidence on poverty

Young people with dementia need new approaches to care

Social care: ‘How do others manage without the extra we’re able to afford?’

Ministers’ ‘shocking’ failure to consult DPOs on bill shows UN convention ignorance

Dementia is ‘biggest health and social care challenge’ Read more at: https://www.louthleader.co.uk/news/dementia-is-biggest-health-and-social-care-challenge-1-8712205

‘We need their brains’: donating to the brain bank in search of a dementia cure

Most caregivers of people with dementia are family members, and they need help



 

In The Blogs – October 2018

Three Dementia Fighters

WHO MHGAP Forum 2018

How an Allied Health Professional can help you to live well with Dementia

Mischief

Why I prefer to stand on stage alone and read…….

What to do for ‘the best’

Why is it Hard to Talk About Dying?

Carer’s Tips – I’m looking at clothes and getting dressed

The Writer’s Rights And Responsibilities

Interaction, activity, distress and dementia

Starting to run on empty…….

Responding Mindfully to Emotional Turmoil

Carer’s Tips – Clothes and getting dressed

“The Care Home Journey”; a New Resource

Dementia Research: Measuring Wellbeing

What keeps me going…….?

Nursing Homes, Guilt Trips, and the Promise in Dementialand

Frustration from not connecting Cause and Effect

Rant Wednesday

This week I began a series of articles in response to Sir Philip Alstons visit to the UK next month, to investigate the UN’s 80+ concerns about Poverty and Disability abuses in the UK here

Sir Philip’s visit is an opportunity to peel back the facade of what the UK claims to do and what is really happening in the real world in the UK.

It is an opportunity for the UN to reinforce the need for the The United Nations Convention on the Rights of Persons with Disabilities (CRPD) to be fully incorporated into UK law. The UK Government recognises the CRPD as International Law but cherry picks which bits it wants to incorporate into UK Law.

Beneath the surface of the fake news and “Government Initiatives” our rights under the CRPD are being abused as are those living in poverty.

Access to financial support with or without a disability is patchy at best and there is no equality of support and services between conditions.

The proposed Liberty Protection Safeguard and the new BMA guidance being circulated to some members about dehydrating, starving and sedating people to their deaths, but for which there will be no public consultation

The cynical side of me feels that the Recent Global Disability and Mental Health Summits and the coming interim announcement for the Long Term NHS plan which just happens to be being published just as Sir Philip Alston visits the UK, are just a smokescreen to deflect from what is really going on.

Peel back the surface and you will find more barriers than could be found in Paris during the French Revolution.

The ever increasing number and size of forms to access entitlements, the inhospitable assessments carried out by persons who may not have enough knowledge of the conditions they are assessing, who write assessments that bear no resemblance to the person they are assessing and the 1930’s attitudes of the media and society where the young shouldn’t pay for the old, those in poverty and the disabled are a drain on society…

The private companies paid to do what NHS staff are more than capable of doing, which can only benefit the fat cat pay, shareholders and profits of these companies instead of using that money for the benefit of people and the NHS.

The privatisation of the NHS is not a new phenomenon, under Margaret Thatcher, “Care in the Community” led to the selling off of council run care homes and institutions, new Labour introduced a more hostile benefits system with things like the Work Capability Assessments and outsourcing Benefit Assessments, public property is now run for profit.

While prices rise and the number of billionaires grow, more people live in poverty or experience discrimination.

The Disabled, LBGT and BAME communities all experience the abuse of their rights.

The 20th Century could be seen as a time of fighting against injustice, inequality and rights abuses.

The 21st Century appears to be a hostile war led by politicians, media and society against, justice, equality and rights.

Is this really the 21st Century Britain we all want.