Category: 2019e

Bank Holiday Musings – Spring Bank Holiday 2019

Last week was Dementia Action Week and the Alzheimer’s Society Conference.

Across England, Wales and Northern Ireland there were many events to improve knowledge and change the perceptions of Dementia.

Scotland has their week and Conference next month.

The European Elections have dealt a bloody nose to the Tories and Labour.

It is worrying how a right wing party, only 6 weeks old can command almost a third of the votes in the European Election in the UK.

  • Politics by populism
  • Politics by Social Media
  • Parliament like a headless Chicken
  • Rudderless and without leaders

Where are the Statesman and Women of the past?

The UK Government opposition are lead by a Chameleon.  

Image result for Chameleon red

Throughout his political career Jeremy Corbyn has been an outspoken Eurosceptic, fighting the last General Election on a pro Brexit Manifesto yet it is unclear to me what he or the fractured Labour Party now stands for.

  • Leave
  • Remain
  • 2nd Referendum followed by a 3rd, 4th… referendum if some don’t like the result
  • Revoke Article 50
  • Extend Article 50
  • No Deal Brexit

Since he became leader, he has sat on the fence however, recently the fence and the Labour support has collapsed below him.


Are they still the Conservative Party Mark 2 of the Blair/Brown years, have they gone back to their roots ?

Is the end of Teresa May, the end of 2 party politics


Will there be a fundamental change in the makeup of British Politics.

Not much from the Tories this morning

Jeremy Corbyn earlier talked about Social change, the NHS and Social Care.

Talk is cheap action is power.

Dominic Raab was on the Andrew Marr show yesterday morning showing that politicians are still out of touch.

He wouldn’t answer the question whether he supports human rights, rather wanting to reform the Human Rights legislation but scant on the detail of what that means.

He also talked about reducing income tax and raising the National Insurance threshold.

Services have been cut to the bone, we have s post code lottery and inequality of services contrary to Article 25 of the United Nations Convention on the Rights Persons with Disabilities.

People live in abject poverty, relying on Food Banks including NHS Nurses.

Yet the fat cats that run companies have increased their remuneration from approximately 30 times the lowest pay in their company to 130 times.

It isn’t rocket science to work out that a large part of price rises of the last few decades have not been due to increased costs but to line the pockets of a minority, for which the majority have paid the price.

Rather than reducing taxation, taxes need increasing to properly fund services along with price, rent and wage controls.

The introduction of Tax Credits under the Blair Government has done nothing to reduce inequality and poverty.

All that has happened is that tax revenues have subsidised the lower paid whilst the higher paid have increased their share of the pie.

There was a suggestion last year (I forget who by) that by 2035, 1% of the world population will own 99% of the worlds money – if that is the case, poverty will never be eradicated, rather more people will live in poverty and all that awaits us is a Dystopian future.

Comments on the similarities to the 1930’s are increasing. 

Last years BMA guidance on starving and dehydrating patients to death along with the potential abuses of the new Liberty Protection Safeguard and benefit reform have lead to a system not dissimilar to the first stage of the Holocaust which eradicated hundreds of thousands of the disabled through Hungerhauser and Aktion T4.

Damian Green’s, another out of touch politician, whose recent paper on Social Care advocates for increased taxation for over 40’s to fund Social Care which is divisive. 

During the Second World War the foundations of the Welfare State were built leading to its implementation after the war.

Since 1948, the Welfare State has slowly been dismantled beginning with Attlee’s government’s introduction of Dentist and Optician charges.

If the over 40’s pay increased taxation to fund Social Care, should not under 40’s pay increased taxation to fund Maternity services, Education, Child services etc.

The basis of the Welfare State is that all people of working age pay tax and National Insurance for the benefit if those in need.

You never know when life throws you a curved ball !! 

With the Mental Capacity Amendment Bill about to receive royal assent and people continuing to be subjected to poverty and rights abuses, may be it is time to change from the 1st past the post system to a form of proportional representation.

Maybe that system would have a better representation of the needs of the people of the UK.

Maybe we would still be in the same chaos we are in now.

History contains warnings, will Politicians take note…


Bank Holiday Musings – May Bank Holiday

The experiences of life with Dementia takes many forms.

Generally, the media portrays people living with Dementia in the Palliative stage using imagery such as the hunched over drooling aggressive person, wandering aimlessly with wrinkly hands.

Professionals viewpoints may come solely from the same Palliative stage and care partners and family who generally have negative experiences and whose experiences cloud their perceptions of their loved ones life with Dementia.

Then there are the people living with Dementia, sometimes described as the lived experience or experts by experience.

To start with, let’s call a spade a spade.

Dementia is a cruel, insidious, chronic terminal disease, that strips us of our personhood, abilities and humanity.

As we grow up, we may have seen family members living with Dementia, or through our working lives, not truly understanding what that person is understanding.

A couple of analogies that come to mind are childbirth and chronic pain, toothache and a Migraine..

If you are a woman reader you will have experienced  the emotional, physical and mental experiences of childbirth.

If you are a man, do you really understand what your partner experienced, do you understand your partners behaviour during childbirth, did you feel guilt anger or confusion, did you truly understand what they were going through?

Chronic pain is experienced differently from person to person, they may have a lower pain threshold than you, they may become aggressive when you are close to them, or trying to calm them with words.

You may have toothache and wander aimlessly looking for somewhere to sit that might aleve your pain or be in town and wander aimlessly looking for somewhere quieter away from artificial light and noise.

Continually we are spoken for not asked to speak for ourselves.

Decisions are made for us, services are introduced without involving us or asking us what we need.

As we go through our lives with Dementia, gradually over time developing new challenges, changes to our abilities, insidiously removing the person we once were.

Stop speaking for us

Stop telling others how we feel

Stop telling others why we do something

Stop developing new services or research without involving us.

We don’t wander aimlessly or get lost

We walk with a purpose that we may not be able to express.

We have universal rights.

We don’t have behaviours or aggression.

We are Human beings, we have emotions and emotional responses just like anyone else.

Do everything with us

Involve us

Ask us