Category: Archived

Next Month – Alzheimer’s Society – Cupcake Day – 13 June 2019

Sign up to Cupcake Day

It’s time to dust off your bowls and whip out your whisks – Cupcake Day is back! Whether you bake it or fake it, sign up today and we’ll send you out a free fundraising kit.

 

Sign up today

Cupcake day

Hosting your Cupcake Day

  1. Sign up and receive your free fundraising kit in the post.
  2. Simply decide when and where to host your Cupcake Day. Cupcake Day is 13 June 2019, but you can host yours on any day that suits you!
  3. Start baking and/or buying delicious treats for your day (yes, faking is definitely allowed!) and raise as much dough as possible to help beat dementia.

What’s in your fundraising kit?

  • Posters to help you spread the word
  • Fundraising ideas and fun games to play on the day
  • A donation box and Gift Aid form (for the all-important ‘dough’)
  • Cake toppers and decorations
  • A selfie-frame to share your creations on social media
cupcake kit

How you’re baking a difference

In the average time it takes to bake a batch of cakes, six people in the UK will develop dementia. It is now the leading cause of death in England and Wales, overtaking both cancer and heart disease.

Your Cupcake Day can help to fund pioneering research, crucial support services and vital care. By hosting your day, you are uniting with us in the fight against the UK’s biggest killer.

Until the day we find a cure, because of Cupcakers like you, Alzheimer’s Society can continue to be here for anyone affected by dementia – wherever they are, whatever they’re going through.

Cupcake Day has raised £2.7 million since 2016 – let’s make this year our biggest yet!

Cupcake Day Website

Moving Into the light

Things began to change ion the first half of 2018

and then in July I started to Leave the Dark Hole behind

Back to Woodbrooke for the Young Dementia UK Conference

In  october I was on an interview panel for a new part time and voluntary vacancies from Young Dementia UK in Sheffield

which has led to the setting up of a new Young Onset Dementia Support Group in Sheffield.

In October I wrote a letter for a\ website in Italy Una lettera a Eloisa Stella e al popolo italiano

and spent A Day at the Royal College of Psychiatrists

followed by a day in London for a Forum for the Long Term NHS Plan

My participation in research continued with “The Twitter Use of People Living with Dementia” Study – Part 2

Part 6 -The RADAR Alzheimer’s Research Study. 

and a Health-Related Internet Use by Individuals with Young Onset Dementia – A Qualitative Study

At the end of November I was at the UK Dementia Congress 2018

followed by the Trent Dementia – Life with Dementia Conference

and the Modelling Dementia Conference

Also in December my local Memory Cafe announced New Funding and Increased Services at the Parson Cross Forum in Sheffield

I also spent a day at the first DfID/BOND Partnership Forum in London, following being a delegate at the Global Disability Summit in July 2018 and I then went to Brussels for 4 days to attend a European Commission Conference on Cross Border Vulnerable Adults, both of which I have still to write articles on.

One of the new challenges I increasingly faced was issues with noise and you can read about it here

All in all, a busy 3 months and over Christmas the spectre of fatigue and tiredness was becoming a new challenge in 2019.


Whilst I try to show that there is a life to live after after a younger/earlier diagnosis, to offset the stigma of the media perceptions of Dementia, it is in no way intended to belittle the experiences of professionals or care partners who generally have a negative experience of Dementia in the end stage or Palliative stage as I refer to it.

It is because of my experiences of that stigma from the point of my diagnosis that I write these articles to hopefully enable some who follow, receiving their diagnosis.



 

Sheffield UK, Porter Valley Dementia Cafe, Tomorrow

Porter Valley Dementia Cafe opened on the 6th December 2018 for patients of the 5 GP practices in the Porter Valley area.  This cafe has been funded by the NHS Sheffield Clinical Commissioning Group (CCG) for patients living with Dementia in the Porter Valley neighbourhood of Sheffield.

It is held at the Bents Green Methodist Church 172 Knowle Lane, Sheffield S11 9SJ.

Cafe’s take place on the first and third Thursday of each month.

dementia cafe poster

dementia cafe

Sheffield UK, Young Onset Dementia Support Group Tomorrow

Earlier in the year, I contacted Young Dementia UK about the lack of support for people living with Dementia under the age of 65 and their care partners and families in Sheffield.

Then I was on the interview panel that appointed a  Young dementia UK co-ordinator for Sheffield.

It is so important for people living with Dementia to be involved in developing new services.

I am pleased to tell you that YoungDementia UK is launching a new monthly group starting on the 16 January 2019 for people living with Young Onset Dementia who live in the Sheffield area.

It will take place every month at

Graves Health and Sports Centre
Bochum Parkway
Sheffield
S8 8JR

The 13th February group tomorrow will be at 1.00-3.00 pm’

It is chance to meet new people, try new activities and access information about young onset dementia.

Download a poster about the group here.

For more information please contact our Group Coordinator, Natasha Wilson at natashawilson@youngdementiauk.org


Additional Funding

As Sheffield is our 4th largest city and it is quite a way from the north of the city to Graves Health and Sports Centre I am seeking additional funding for a second group in the north of the city.

Any kind soul reading this that may be able to help could contact Natasha for more information.


Note for Professionals and Organisations

I would hope that people receiving a diagnosis of Young Onset Dementia, would be referred by their Neurologist to the group, at the point of Diagnosis where appropriate, via Natasha Wilson.

Associated Health Professionals who identify someone who would benefit from being included should also refer people along with other medical professionals the council and other organisations.

Equality of treatment and services regardless of condition is a right set out under the The United Nations Convention on the Rights of Persons with Disabilities (CRPD)

For more information please contact our Group Coordinator, Natasha Wilson at natashawilson@youngdementiauk.org



 

Sheffield UK, Porter Valley Dementia Cafe, Tomorrow

Porter Valley Dementia Cafe opened on the 6th December 2018 for patients of the 5 GP practices in the Porter Valley area.  This cafe has been funded by the NHS Sheffield Clinical Commissioning Group (CCG) for patients living with Dementia in the Porter Valley neighbourhood of Sheffield.

It is held at the Bents Green Methodist Church 172 Knowle Lane, Sheffield S11 9SJ.

Cafe’s take place on the first and third Thursday of each month.

It is open from 2pm to 4pm.

dementia cafe poster

dementia cafe



 

The Journey Continues…

After the first 4 years of my journey with Dementia began in 2014, 2018 marked the beginning of change in my journey with Dementia.

As new year dawned, I was still in that dark place following my diagnosis of Alzheimer’s and Frontotemporal Dementia in March 2017, without the support of the NHS or local Authorities

By the end of March 2018, with the help of the A Good Life with Dementia course ,I had begun to re-engage with life and had begun to reinvent myself.

By the end of June, I had climbed out of the metaphorical Dark Hole  and begun to climb out of the black hole behind.


Whilst I try to show that there is a life to live after after a younger/earlier diagnosis, to offset the stigma of the media perceptions of Dementia, it is in no way intended to belittle the experiences of professionals or care partners who generally have a negative experience of Dementia in the end stage or Palliative stage as I refer to it.

It is because of my experiences of that stigma from the point of my diagnosis that I write these articles to hopefully enable some who follow, receiving their diagnosis.



 

Announcement – New Age UK Dementia Group Sessions starting 13 Nov 2018

A ground-breaking new concept in dementia support is being brought to Sheffield by Age UK.

The sessions have been developed by University College London psychologist, Dr Aimee Spector. They use an evidence-based Cognitive Stimulation Therapy approach which has been found to improve confidence and wellbeing for people with mild to moderate dementia.

Age UK Sheffield will be introducing the sessions starting in November. They will be delivered during evening periods, responding to feedback from carers that they have no regular respite opportunities outside of usual working hours.

Age UK Sheffield Chief Executive, Steve Chu, said: “We are delighted to be bringing this innovation to Sheffield and we’re now taking expressions of interest from people living with dementia and their carers. Our existing Wellbeing Centre for people living with dementia gets amazing feedback for its day centre provision and we are proud to be one of only a handful of local Age UKs who have been chosen to deliver these groups.”

For more details, or to register an expression of interest now, call (0114) 250 2850 or e-mail: enquiries@ageuksheffield.org.uk

Image may contain: 2 people, text

Leaving the Dark Hole behind

Having finally Stepped Out of the Dark Hole the fight against the injustices following my dual diagnosis of Dementia and the continuing fight to live my life with my Dementia had begun .

In July, I attended The University of Sheffield’s Dementia Futures 2018 Conference a showcase for PhD students to present their Dementia research in plain English as a member of the South Yorkshire Dementia Research Advisory Group where we judged the on-stage presentations and the posters for their clarity for people living with Dementia.

Towards the end of July I attended the Global Disability Summit in London as a delegate and I wrote an article about my time their for Dementia Alliance International

I continued taking part in research My Research and The Angela Project – Improving the Diagnosis of Young Onset Dementia Study


One day in August, I put some eggs on to boil, yes reader, I know I’m not supposed to touch the cooker, but I was trying to help.

I went to the shops to get some milk and when I got back my wife told me that some cardboard boxes were next to the cooker and had caught fire, luckily my wife noticed before it took hold.

I wrote an article about The United Nations Convention on the Rights of Persons with Disabilities (CRPD) an important tool to fight against the abuses of people living with Dementia.

I continued taking part in Research including Sinage Research , Part 5 -The RADAR Alzheimer’s Research Study. and Technology Research

I was also in Birmingham for my second visit to Woodbrooke for a Dementia Diaries Meet Up


September was a busy month and brought World Alzheimer’s Month and on the 21st, World Alzheimer’s Day

On the 5th of September, The Mental Capacity Amendment Bill reached the committee stage a piece of legislation that could have a major impact on people living with Dementia.

During September I wrote about The Campaign to Ban BPSD , also about it in Behavioural and Psychological Symptoms of Dementia (BPSD) – What Is It and Behavioural and Psychological Symptoms of Dementia (BPSD) – Why Ban It .

I attended my second South Yorkshire Dementia Research Advisory Group meeting, was a judge for the dementia Friendly Awards and I was also back at Woodbrooke for the Young Dementia UK conference.

At the end of September I spoke at a Dementia Action Alliance meeting in Sheffield and attended my first Alzheimer’s Society, 3 Nations Work Group meeting as a Steering group Deputy in Manchester.


A busier time than previously and more evidence about how enabling post-diagnosis support could be.

You may say reader, how can you do all these things with a diagnosis of Dementia.

Others certainly do, they question our diagnosis, say things like “you don’t look like you have Dementia” or “that happens to me” but we do not choose to have a diagnosis of Dementia and have our rights abused.

At this time I am able to do these things but they come at a price afterwards. It is both tiring and the fog of Dementia has it’s revenge.



 

Applications Closed 16 October 2018 – Exciting new part time and voluntary vacancies from Young Dementia UK in Sheffield

I live in Sheffield reader and because I am under 65 there has been no post diagnosis support, services assessments or rehabilitation, even over 65 the support is limited.

It is so important to support to support people and their family from the point of diagnosis.

These vacancies provide an exciting opportunity to make a difference.


Exciting new vacancies – Group Coordinator & volunteers, Sheffield

In response to the inadequate support for people with young onset dementia in most areas of the UK, YoungDementia UK is developing a programme of national initiatives including piloting local service opportunities.  There are approximately 150 younger people living in Sheffield with dementia and 100s more family members providing support.

We are currently recruiting a part-time Group Coordinator to work for us 8 hours a month who will develop, market and coordinate a peer support group for people living with young onset dementia and their family members in Sheffield.  The group will offer opportunities for people to meet, share experiences and socialise.

Applicants should have prior experience in developing and facilitating groups as well as excellent organisational and communication skills.

Download Job Description  |  Application form  |  Diversity form

Deadline for applications is 16 October 2018.  Please note we do not accept CVs.
Completed applications should be sent to donnachadwick@youngdementiauk.org 

We are also looking for three volunteers to support the Group Coordinator.  

Download Volunteer Application form

If you would like further information about these vacancies please contact Donna Chadwick, National Development Manager – donnachadwick@youngdementiauk.org