Dementia Diaries is a UK-wide project that brings together people’s diverse experiences of living with dementia as a series of audio diaries. It serves as a public record and a personal archive that documents the views, reflections and day-to-day lives of people living with dementia, with the aim of prompting dialogue and changing attitudes.

The people behind Dementia Diaries take safeguarding of the Diarists seriously.

They listen to every diary before it is posted on the website and always act if they have concerns.

Dementia Diaries Website

Who are we working with?

They are all part of the Dementia Engagement and Empowerment Project (DEEP). The Dementia Diaries initiative was designed by the non-profit communications agency On Our Radar (www.onourradar.org). It was launched by On Our Radar in January 2015 in partnership with Innovations in Dementia, Ownfone and Comic Relief, and was handed over to Innovations in Dementia in August 2016.

Phase 2 of the project is funded jointly by Comic Relief and BIG Lottery Fund.

A team from Leeds Beckett University was asked to evaluate the success of Dementia Diaries. A dementia-friendly summary of their findings is available here (pdf, opens in a new tab) or you can download the full report here (pdf, opens in a new tab).

The website provides the audio recording and a written transcript of each diary, you can volunteer to transcribe the audio diaries here


This weeks Diaries include:

GLENDA IS FEELING MUCH BETTER NOW

JACQUI HAS BEEN RAISING AWARENESS

PAUL TALKS ABOUT DEMENTIA ENQUIRERS AND “COMING BACK TO LIFE”

TOMMY TALKS ABOUT THE IMPORTANCE OF DEMENTIA FRIENDLY COMMUNITIES..

“BE GRATEFUL FOR WHAT YOU HAVE GOT” SAYS RAE

JACQUI ON THE IMPORTANCE OF FOLLOWING UP.

RONALD HAS SET HIS WORDS ABOUT HIS EXPERIENCE AT WOODBROOKE TO MUSIC.

AGNES IS FEELING HEARD IN THE SUPPORT SHE HAS BEEN GETTING FOR HER RESPIRATORY PROBLEMS.

TRACEY HAS HAD A VERY BUSY AND POSITIVE WEEK

STEPHEN’S HAD A FUNNY OLD COUPLE OF WEEKS.

Come by next week to hear more


Note for Professionals

You can use these Diaries as part of your Dementia Training.

As a courtesy, please email Rachel Niblock at Niblock@myid.org.uk to let her know that you will be using some of the Diaries, it helps when applying for funding in the future.