I wrote this on Thursday as I am back at Woodbrooke in Birmingham this weekend, partly for a break but also to learn more about our senses in a Quaker way.

I find Woodbrooke very relaxing and the staff are wonderful.

Talking of our senses:

‘Talking Sense’ has been co-written by my friend Agnes Houston who is a co-founder of the Scottish Dementia Working group.


Agnes was diagnosed with younger onset Alzheimer’s Disease in 2006 at the age of 57.

The book contains interesting insights, practical tips and case studies.

Click to read a digital copy

There is a new Internet Radio Station DEEPNess Dementia Radio click on the link to find out more


Petition – Don’t put our NHS up for negotiation

See dementia as a terminal illness so under 65’s are instantly eligible for PIP (9 Oct 19)

Petition – The lack of provision of social care in the UK is leading to immense distress for all people affected by dementia and their care partners.

Petition – No more PIP Assessments for People with Life Long Disability or Conditions

Justice for Jodey Whiting. Independent inquiry into deaths linked to the DWP


Consultation – Learning disability and autism training for health and care staff

Investigating the impact of stigma on people living with dementia and carers: A questionnaire study PART 1

General Pharmaceutical Council – Consultation on guidance for pharmacist prescribers


Needs of Young People with Dementia 2019

Welcome to the Dementia 2020 Citizens’ Engagement Panel online Hub



Dimensions of Dementia – A Mother and Sons Journey Together

DEEPNess Dementia Radio


Alzheimer Europe

LEAD Coalition 31 Jul 19

Young Onset Dementia Alzheimer’s Group (YODA)


” Because people living with dementia are individuals. They are multidimensional human beings who have more than one story, and a myriad of memories that are all part of who they are today.

Because we need to see people with dementia for more than who they were,but for who they are now. And who they WILL be. We are all capable of ongoing growth and experience, including people living with dementia.

Because people with dementia might be the exemplification of curiosity, with their ability to deeply experience long-past memories, as well as deeply experience this present moment.

How do we cultivate this curiosity, and honor its complexity? How do we ensure that the supports and services we create for people living with dementia reflect who they are as multidimensional individuals?  

Sonya Barsness’s article titled Do People with Dementia Really “Live in the Past”?

New Resources

Young Dementia UK – A decision-making guide for GPs

Dementia words matter: A DEEP guideline on language about dementia