Dementia Diaries is a UK-wide project that brings together people’s diverse experiences of living with dementia as a series of audio diaries. It serves as a public record and a personal archive that documents the views, reflections and day-to-day lives of people living with dementia, with the aim of prompting dialogue and changing attitudes.

The people behind Dementia Diaries take safeguarding of the Diarists seriously.

They listen to every diary before it is posted on the website and always act if they have concerns.

Dementia Diaries Website

Who are we working with?

We are all part of the Dementia Engagement and Empowerment Project (DEEP). The Dementia Diaries initiative was designed by the non-profit communications agency On Our Radar (www.onourradar.org). It was launched by On Our Radar in January 2015 in partnership with Innovations in Dementia, Ownfone and Comic Relief, and was handed over to Innovations in Dementia in August 2016.

Phase 2 of the project is funded jointly by Comic Relief and BIG Lottery Fund.

A team from Leeds Beckett University was asked to evaluate the success of Dementia Diaries. A dementia-friendly summary of their findings is available here (pdf, opens in a new tab) or you can download the full report here (pdf, opens in a new tab).

The website provides the audio recording and a written transcript of each diary, you can volunteer to transcribe the audio diaries here


This weeks Diaries include:

LORRAINE ALSO SINGS THE PRAISES OF VIRGIN TRAINS!

AGNES FEELS SAFE AND UNDERSTOOD WITH HER ‘DEMENTIA FAMILY’

I FEEL ASHAMED I HAVEN’T DONE ENOUGH – BUT I HAVE A VOICE AND I WANT TO SPEAK

FRANCES IS REALLY DISAPPOINTED THAT THE BOURNVILLE VILLAGE IS NOT MADE OF CHOCOLATE!

‘KEEP GOING’ SAYS STEPHEN FUELLED BY ICE-CREAM IN CORNWALL!

JACQUI WOULD LIKE TO HEAR ABOUT OTHER CARDS USED FOR COMMUNICATION

FRANCES IS FEELING HUMBLED AND INSPIRED!

DORY REFLECTS ON THE DEMENTIA DIARIES GATHERING

WOODBROOKE GATHERING – A POEM BY WENDY

THE ‘WORK’ OF DEMENTIA DIARIES – PART OF OUR HEARTS JOY

THE DAY THE DOG ATE GLENDA’S SPECTACLES

I CAN’T GET A HANDLE ON IT – I CAN’T COME TO TERMS WITH IT

Come by next week to hear more


Note for Professionals

You can use these Diaries as part of your Dementia Training.

As a courtesy, please email Rachel Niblock at Niblock@myid.org.uk to let her know that you will be using some of the Diaries, it helps when applying for funding in the future.