Receiving a diagnosis of Dementia is a life changing event.

Often it feels like the beginning of the end, the images we see and read in the media and the perceptions of others have a negative effect.

For some however, it can be the end of the beginning, especially when diagnosed at an earlier stage.

The ravages of this insidious disease not yet fully taking over the person receiving the diagnosis, leaving reducing abilities.

Making memories, continuing to do the things you like doing for as long as possible, trying new things, may be possible as long as those reducing abilities are there, whilst acknowledging that there are many unable to do these things.

Some may Advocate for change in the world of Dementia trying to show the positives to counter the negatives, to enable not disable, but never wishing to have a negative impact on those that cannot do the things they are doing.

In trying to change things, they try to show a positive benefit to change to encourage those with the purse strings to uphold the rights of everyone living with Dementia, whilst acknowledging that changes effects do depend on the individual and where they are in this life with this insidious chronic terminal disease.

There is a new Internet Radio Station DEEPNess Dementia Radio click on the link to find out more

Petitions

Petition – Don’t put our NHS up for negotiation

See dementia as a terminal illness so under 65’s are instantly eligible for PIP (9 Oct 19)

Petition – The lack of provision of social care in the UK is leading to immense distress for all people affected by dementia and their care partners.

Petition – No more PIP Assessments for People with Life Long Disability or Conditions

Justice for Jodey Whiting. Independent inquiry into deaths linked to the DWP

Consultations

Consultation – Learning disability and autism training for health and care staff

Investigating the impact of stigma on people living with dementia and carers: A questionnaire study PART 1

General Pharmaceutical Council – Consultation on guidance for pharmacist prescribers

Survey

Needs of Young People with Dementia 2019

Welcome to the Dementia 2020 Citizens’ Engagement Panel online Hub

Videos

Radio

Dimensions of Dementia – A Mother and Sons Journey Together

DEEPNess Dementia Radio

Newsletters

Alzheimer Europe

LEAD Coalition 31 Jul 19

Young Onset Dementia Alzheimer’s Group (YODA)

Blog

” It’s simply time for others to take over. I’ve had enough.

No, of course I’m not going to stop everything! And I’ve got a few commitments in my diary for the next year. But I want to stop thinking about bloody dementia every hour of every day.

And just live. “

George Rook’s article titled What really matters?