Blogs have been delayed due to a difficult few days where I have been unable to focus.

This could partly be due to the recent extremes of the weather but in talking to other people living with Dementia around the world, there is a consensus that things have just got a lot tougher over the last few months.

Struggles with challenges new and old seem to be amplified and although it may not be obvious outwardly, inwardly there are battles going on with our Dementia’s.

For 103 weeks, Peter Berry did his weekly video about life with Alzheimer’s.

Peter has now decided to stop the weekly video’s and do a monthly one on the last Friday of each month.

So here is month 1 of Peter’s Videos.


Petition – Don’t put our NHS up for negotiation

See dementia as a terminal illness so under 65’s are instantly eligible for PIP (9 Oct 19)

Petition – The lack of provision of social care in the UK is leading to immense distress for all people affected by dementia and their care partners.

Petition – No more PIP Assessments for People with Life Long Disability or Conditions

Justice for Jodey Whiting. Independent inquiry into deaths linked to the DWP


Consultation – Learning disability and autism training for health and care staff

Investigating the impact of stigma on people living with dementia and carers: A questionnaire study PART 1

General Pharmaceutical Council – Consultation on guidance for pharmacist prescribers


Needs of Young People with Dementia 2019

Welcome to the Dementia 2020 Citizens’ Engagement Panel online Hub



Dimensions of Dementia – A Mother and Sons Journey Together


Alzheimer Europe

LEAD Coalition

Young Onset Dementia Alzheimer’s Group (YODA)


” Two questions pensioner poverty is going up, why? Child poverty is not coming down despite several government attempts to tackle it over the years.

Some thing new the report shows; nearly half of people in poverty live in a family where someone is disabled.

This is shocking, and has clearly been overlooked by government for many years.

Surely this need to be addressed  

Raymond Duffy’s article titled More Than 10% of the #UK Population Live in Persistent Poverty

New Resources

Young Dementia UK – A decision-making guide for GPs

Dementia words matter: A DEEP guideline on language about dementia