This week, has seen two of my friends recognised by Universities for their tireless work around Dementia.

Firstly Chris Roberts, who some will know that the Panorama programme featuring Chris and his family, encouraged me to go to my GP and seek a diagnosis.

Chris became an Honorary Fellow of bangor University on Wednesday

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Also recently, Wendy Mitchell, who has also been an inspiration to myself and many others,  received an Honorary Doctorate from Hull University

and also from The University of Bradford

Congratulations and well deserved to you both.


For some that are able, a diagnosis of Dementia can bring many new and wonderful opportunities.

Too often, the vital support of family members and friends goes unnoticed or unrecognised

Without the support of our families, often we are unable to achieve what we can possibly do without their support.

Without their support AND sacrifices, we would be unable to live the lives we currently do and would be more fearful of the future without that support.

Just as our parents made sacrifices to give us the best childhood they could, our families make sacrifices to give people living with Dementia and other disabilities the best possible quality of life, often to the detriment of their own health and wellbeing.


Petition – Don’t put our NHS up for negotiation

See dementia as a terminal illness so under 65’s are instantly eligible for PIP (9 Oct 19)

Petition – The lack of provision of social care in the UK is leading to immense distress for all people affected by dementia and their care partners.

Petition – No more PIP Assessments for People with Life Long Disability or Conditions

Justice for Jodey Whiting. Independent inquiry into deaths linked to the DWP


Consultations

Consultation – Learning disability and autism training for health and care staff

Investigating the impact of stigma on people living with dementia and carers: A questionnaire study PART 1

General Pharmaceutical Council – Consultation on guidance for pharmacist prescribers


Survey

Needs of Young People with Dementia 2019

Welcome to the Dementia 2020 Citizens’ Engagement Panel online Hub


Videos


Radio

Dimensions of Dementia – A Mother and Sons Journey Together


Newsletters

Alzheimer Europe

LEAD Coalition

Young Onset Dementia Alzheimer’s Group (YODA)


Blog

” I mentioned “Only the wealthy few can afford the luxury of well staffed, well supported homes.” Yet forgot to say how not all these homes offer knowledgeable and appropriate care for those with dementia, such is the state of dementia care.

Anyway here’s a link to the article on line – I did my best with the time available….I hope they ask my playmates in the 3 Nations as they could offer a far more in depth article….. 

Wendy Mitchell’s article titled “End the Dementia Care Costs Betrayal” …….


New Resources

Young Dementia UK – A decision-making guide for GPs

Dementia words matter: A DEEP guideline on language about Dementia