Sorry its late reader, but it has been one of those weekends.
We may not look like we have Dementia.
We may not look like we have challenges to our norm.
Don’t be fooled.
We put up a facade of normality
But inside a battle rages with our Dementia.
Where like this weekend for me, we lack the physical and mental energy
To do What we need to
We are not lazy
We’re just fighting this battle to retain some of what once was us
Petition – Don’t put our NHS up for negotiation
See dementia as a terminal illness so under 65’s are instantly eligible for PIP (9 Oct 19)
Petition – The lack of provision of social care in the UK is leading to immense distress for all people affected by dementia and their care partners.
Petition – No more PIP Assessments for People with Life Long Disability or Conditions
Justice for Jodey Whiting. Independent inquiry into deaths linked to the DWP
Consultation – Learning disability and autism training for health and care staff
Investigating the impact of stigma on people living with dementia and carers: A questionnaire study PART 1
General Pharmaceutical Council – Consultation on guidance for pharmacist prescribers
Needs of Young People with Dementia 2019
Welcome to the Dementia 2020 Citizens’ Engagement Panel online Hub
Dimensions of Dementia – A Mother and Sons Journey Together
Young Onset Dementia Alzheimer’s Group (YODA)
” As with life and people in general, all will respond to this challenge differently. Some will seek out the limelight, and that’s fine, others will be shadows in the corners, and that’s fine too. The main thing is we’re talking. Our collective voices in whatever way we choose or whatever way our talents allow, are all relevant, all going some small way to changing the future.
That’s what keeps me going. “
Wendy Mitchell’s article titled Are we self promoting…..? I don’t think so…..
Young Dementia UK – A decision-making guide for GPs
Dementia words matter: A DEEP guideline on language about dementia
I imagine that the heat isn’t helping with energy issues, Howard. Hope things have improved for you now.
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Thank you Sandra, the heat may not have helped but it is taking longer to recover when I am busy, the alternative…
Indeed. Do what you can with what you have 🙂
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