I have been away since Friday, so this weeks musings are slightly different due to the reduced time to prepare.
Living with Dementia, it is important, whether you have the diagnosis or care for someone with the diagnosis to have a break.
Now I know I am lucky that I was diagnosed at an earlier stage and can therefore cope with time away alone for now at least.
The people that care for us, our friends and family, also need time away from our Dementia, for if they do not look after themselves as time goes on, they also become the ones that need to be cared for as well.
“‘Sometimes dementia whispers in my ear, “Nigel, you ain’t strong enough to withstand the storm.” But one phone call, conversation or meeting with my group and I’m able to say to dementia, “I am the storm.”
‘There is no support like peer support – it has saved my life.’
As he plays his part in rallying the growing dementia movement, Nigel wants to ensure that no one is left behind.
‘I want everyone to have a say, everybody to have a view,’ he says. ‘I want everybody to feel valued and wanted – that’s the key. Nobody should feel marginalised or abandoned.
‘We’re all important. We’ve all got something to offer.’“
Nigel Hullah’s blog titled We are the storm: The power of a shared voice