After the taste of summer over Easter, winter seemingly has returned.
Frosty mornings and windy, wet days, with temperatures barely reaching double figure somedays, with the forecasters even promising some snow this weekend.
It’s been a busy week, 2 days in Birmingham with Dementia Adventure, a day in London with the Prime Ministers Champions group and yesterday the final session for the RADAR research study which I have been involved in over the last 12 months.
Thankfully not one of the research studies that have finished suddenly without informing people taking part before informing the media.
That leads me on to discussions about research.
I will be taking part in an Alzheimer’s Disease International Webinar on Friday in London , details below
Alzheimer’s Disease International Webinar – “Let’s Talk About Dementia Research” – 10th May 2019
ADI also have a survey running which you may wish to take part in, especially if you are a man as last I heard, only 20% of respondents were men.
ADI wants to hear what YOU think about Dementia!
Nominations for the National Diversity Awards 2019
You can nominate here
Other Nominations
You can nominate here
Petitions
New See dementia as a terminal illness so under 65’s are instantly eligible for PIP (9 Oct 19)
Petition – Pay Carers an allowance equivalent to a fulltime job at the National Living wage
Petition – No more PIP Assessments for People with Life Long Disability or Conditions
Justice for Jodey Whiting. Independent inquiry into deaths linked to the DWP
Consultations
Consultation – Learning disability and autism training for health and care staff
Australian Royal Commission into Violence, Abuse, Neglect and Exploitation of People with Disability
General Pharmaceutical Council – Consultation on guidance for pharmacist prescribers
Survey
Welcome to the Dementia 2020 Citizens’ Engagement Panel online Hub
Tell us your experience of living with Dementia
Sheffield CCG – Urgent Care Review 2019
Videos
Newsletters
LEAD Coalition News – April 24 2019
Young Onset Dementia Alzheimer’s Group (YODA) – Newsletter No: 2
Blog
“We are not asking for a lot.
We are asking for our lives, and for a little help to live them.
We will die. Our disease is terminal.
Is that a reason to refuse help?”
George Rook’s blog titled Dante’s Inferno
New Resources
Young Dementia UK – A decision-making guide for GPs
Dementia words matter: A DEEP guideline on language about dementia
When The Fog Lifts 