After the taste of summer over Easter, winter seemingly has returned.

Frosty mornings and windy, wet days, with temperatures barely reaching double figure somedays, with the forecasters even promising some snow this weekend.

It’s been a busy week, 2 days in Birmingham with Dementia Adventure, a day in London with the Prime Ministers Champions group and yesterday the final session for the RADAR research study which I have been involved in over the last 12 months.

Thankfully not one of the research studies that have finished suddenly without informing people taking part before informing the media.

That leads me on to discussions about research.

I will be taking part in an Alzheimer’s Disease International Webinar on Friday in London , details below

Alzheimer’s Disease International Webinar – “Let’s Talk About Dementia Research” – 10th May 2019

ADI also have a survey running which you may wish to take part in, especially if you are a man as last I heard, only 20% of respondents were men.

ADI wants to hear what YOU think about Dementia!

Nominations for the National Diversity Awards 2019




You can nominate here

Other Nominations

You can nominate here


New See dementia as a terminal illness so under 65’s are instantly eligible for PIP (9 Oct 19)

Petition – The lack of provision of social care in the UK is leading to immense distress for all people affected by dementia and their care partners.

Petition – Pay Carers an allowance equivalent to a fulltime job at the National Living wage

Petition – No more PIP Assessments for People with Life Long Disability or Conditions

Justice for Jodey Whiting. Independent inquiry into deaths linked to the DWP


Consultation – Learning disability and autism training for health and care staff

Australian Royal Commission into Violence, Abuse, Neglect and Exploitation of People with Disability

Investigating the impact of stigma on people living with dementia and carers: A questionnaire study PART 1

General Pharmaceutical Council – Consultation on guidance for pharmacist prescribers


Welcome to the Dementia 2020 Citizens’ Engagement Panel online Hub

Tell us your experience of living with Dementia

Sheffield CCG – Urgent Care Review 2019



Alzheimer Europe – April 2019

LEAD Coalition News – April 24 2019

Young Onset Dementia Alzheimer’s Group (YODA) – Newsletter No: 2


“We are not asking for a lot.

We are asking for our lives, and for a little help to live them.

We will die. Our disease is terminal.

Is that a reason to refuse help?”

George Rook’s blog titled Dante’s Inferno


New Resources

Young Dementia UK – A decision-making guide for GPs

Dementia words matter: A DEEP guideline on language about dementia