Dementia Diaries is a UK-wide project that brings together people’s diverse experiences of living with dementia as a series of audio diaries. It serves as a public record and a personal archive that documents the views, reflections and day-to-day lives of people living with dementia, with the aim of prompting dialogue and changing attitudes.

Who are we working with?

We are all part of the Dementia Engagement and Empowerment Project (DEEP). The Dementia Diaries initiative was designed by the non-profit communications agency On Our Radar (www.onourradar.org). It was launched by On Our Radar in January 2015 in partnership with Innovations in Dementia, Ownfone and Comic Relief, and was handed over to Innovations in Dementia in August 2016.

Phase 2 of the project is funded jointly by Comic Relief and BIG Lottery Fund.

A team from Leeds Beckett University was asked to evaluate the success of Dementia Diaries. A dementia-friendly summary of their findings is available here (pdf, opens in a new tab) or you can download the full report here (pdf, opens in a new tab).

The website provides the audio recording and a written transcript of each diary, you can volunteer to transcribe the audio diaries here


This weeks Diaries include:

JACQUI PLEASED TO CONTRIBUTE TO THE JOURNAL OF DEMENTIA CARE ABOUT ALEXA.

STEPHEN SPOKE IN FRONT OF 80 PEOPLE AND HAD REALLY GOOD FEEDBACK

IN GENERAL THE LAST MONTH HAS BEEN DREADFUL FOR ME

PAUL IS REALLY IMPRESSED WITH HIS FIRST ZOOM MEETING

I WAS A BIT SHOCKED, I WENT QUITE BLANK, I FELT VULNERABLE. I REALISED ONCE AGAIN THAT I HAD EARLY ONSET ALZHEIMER’S

RESEARCH FOR A CURE FOR THE FUTURE IS IMPORTANT BUT WE NEED TO THINK ABOUT SUPPORT THAT IS NEEDED NOW

WE ALL NEED THAT SPECIAL PLACE TO GO WHEN YOU NEED TO MAKE SENSE OF WHAT’S HAPPENING.

I AM BEGINNING THE PROCESS OF COMING THROUGH MY MID-WINTER MISERY MOODS.

JACQUI IS EXCITED TO FIND A VOLUNTEER DRIVER ALTERNATIVE TO PUBLIC TRANSPORT

HOW DO YOU FACILITATE PASSIONATE DIFFERENCES OF OPINIONS? MELVYN CONTEMPLATES THIS AFTER WATCHING A HEATED TV INTERVIEW

COMPARE DEMENTIA TO THE DUCK ANALOGY OF PADDLING FRANTICALLY BELOW THE WATER

STEPHEN IS ENJOYING DOING TALKS AND HE ENCOURAGES EVERYBODY LIVING WITH DEMENTIA TO ‘KEEP GOING’

DORY’S FOUNTAIN IS SPURTING IN TO LIFE IN THE SUN!

STEPHEN IS BEING KEPT BUSY AND IT’S THE WAY HE LIKES IT. ‘DON’T BE AFRAID JUST GO OUT AND DO IT. SPEAK FROM THE HEART’

GLENDA SAYS HOW IMPORTANT IS TO HAVE TIME FOR HERSELF TOO

 


Note for Professionals

You can use these Diaries as part of your Dementia Training.

As a courtesy, please email Rachel Niblock at Niblock@myid.org.uk to let her know that you will be using some of the Diaries, it helps when applying for funding in the future.