I am currently running a fundraiser on Facebook for Dementia UK.
Why, you may ask reade, did I choose Dementia UK.
In Sheffield UK where I live, the support for people living with Dementia and their families, is woefully short of other chronic terminal diseases.
There are currently just over 7,000 people living with Dementia in Sheffield according to the CCG which means that with a diagnosis rate of 2 thirds and including undiagnosed, there are ten to eleven thousand people living with Dementia in Sheffield, with the estimated diagnosis rate for under 65s in England in August 2018 at 40.7%, that figure may be higher.
When you add family members as carers, that figure increases significantly for the number of people that need access to Specialist Nurses.
Having worked in healthcare for nearly 20 years, I have seen the benefits of having access to specialist nursing and the cost benefit to the NHS and Local Authorities.
If you have cancer, there is a Macmillan Unit at the Northern General Hospital, with Macmillan Nurses who support people living with Cancer and their families.
If you have Heart Failure, a Stroke, Diabetes, a Stoma, Pain, etc there are Specialist Nurses to support the person and their family including whilst you are an inpatient at one of the Hospitals in Sheffield.
Until I retired after nearly 20 years in Healthcare, I had seen the wonderful things that these specialist Nurses provided from the point of diagnosis, but also how people living with Dementia were not supported or had access to any specialist Nurses.
Indeed, on getting my diagnosis of Dementia in March 2017, I received no support, services or assessments from the NHS or Local Authority in line with the NICE Guidelines or International Law under the United Nations Convention on the Rights of Persons with Disabilities, not forgetting that Dementia is not a Mental Health Disorder but a Cognitive Disability as defined by the UN and WHO under International Law.
If you are over 65 in Sheffield, you get 1 year at the Memory Service and then are left until you need the intervention of a Crisi Team, by which time it is too late to empower someone to live within the reducing limits of their diagnosis.
If you are under 65, you wait to access the Memory Service when you are 65 or the Crisis team.
Thanks to Young Dementia UK we now have a Young Onset Dementia Support Group in Sheffield but support is something that the NHS and Local Authority should be providing in line with the NICE Guidelines or International Law under the United Nations Convention on the Rights of Persons with Disabilities
So reader I have set up this fundraiser to try and get Admiral Nurses established in Sheffield to support people living with Dementia and their families at home, in their community and when they are at a Hospital or Care Home setting.
You can read about my experiences here
Please Donate here Thank You
UN CRPD Article 25 states