This Week on Dementia Diaries – 23 March 2019

Dementia Diaries is a UK-wide project that brings together people’s diverse experiences of living with dementia as a series of audio diaries. It serves as a public record and a personal archive that documents the views, reflections and day-to-day lives of people living with dementia, with the aim of prompting dialogue and changing attitudes.

Who are we working with?

We are all part of the Dementia Engagement and Empowerment Project (DEEP). The Dementia Diaries initiative was designed by the non-profit communications agency On Our Radar (www.onourradar.org). It was launched by On Our Radar in January 2015 in partnership with Innovations in Dementia, Ownfone and Comic Relief, and was handed over to Innovations in Dementia in August 2016.

Phase 2 of the project is funded jointly by Comic Relief and BIG Lottery Fund.

A team from Leeds Beckett University was asked to evaluate the success of Dementia Diaries. A dementia-friendly summary of their findings is available here (pdf, opens in a new tab) or you can download the full report here (pdf, opens in a new tab).

The website provides the audio recording and a written transcript of each diary, you can volunteer to transcribe the audio diaries here


This weeks Diaries include:

 WE ALL EXPERIENCE DEMENTIA IN OUR OWN UNIQUE WAY

JACQUI TALKS ABOUT THE YEAR SINCE HER FIRST DEMENTIA DIARY

STEPHEN REFLECTS ON THE BBC COUNTRYFILE PROGRAMME

PAUL TALKS ABOUT THE DEEP MEETING IN MANCHESTER

AGNES TALKS ABOUT HER PROBLEMS WITH SELF-DIRECTED SUPPORT.

JACQUI IS PLEASED ABOUT SEEING HER CONSULTANT.

STEPHEN LOOKING FORWARD TO THE CHANGES SPRING WILL BRING.

A GROUP DIARY HERE – THE GREAT CAMDEN MINDS TALKING ABOUT TECHNOLOGY AND EATING CAKE.

AGNES HAD A GREAT MEETING WITH DEMENTIA ENQUIRERS.

THE HAPPY TANDEMER (MHARI) TALKS ABOUT THE ZOOM MEETING SHE TOOK PART IN – FEELING BRAVE!

RAE READS A TOUCHING POEM.

CAROL REFLECTS ON THE ROLE OF FACILITATORS IN DEEP GROUPS.

AGNES REFLECTS ON WHAT MAKES DEMENTIA ENQUIRERS MEETINGS WORK SO WELL.

RAE IS BOUNCING ROUND THE HOUSE…….

THE HAPPY TANDEMER (MHARI) TALKS ABOUT THE ZOOM MEETING SHE TOOK PART IN – FEELING BRAVE!

MELVYN IS CONFIDENT THE ARRIVAL OF SPRING WILL LIFT HIS SPIRITS.

AGNES REFLECTS ON THE HISTORY OF ACTIVISM IN SCOTLAND, AND ENCOURAGES OTHERS TO SEEK OUT PEER SUPPORT.

MELVYN ‘S MESSAGE ABOUT KNIFE CRIME AND THE NZ MASSACRE

CAROL TALKS ABOUT MAKING DECISIONS FOR THE END OF LIFE.

RAE MISSES HER MUM, WHO PASSED AWAY A YEAR AGO.

AGNES TALKS ABOUT THE IMPORTANCE OF ADVENTURE WITH DEMENTIA. FEELING BLESSED.


 

 

Note for Professionals

You can use these Diaries as part of your Dementia Training.

As a courtesy, please email Rachel Niblock at Niblock@myid.org.uk to let her know that you will be using some of the Diaries, it helps when applying for funding in the future.



 

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