You may have noticed that since Christmas, articles in this blog have been less about me and more about information.

The reason for this is that since Christmas, I have been facing increasing challenges and my ability to write articles for this blog have somewhat diminished.

That is not to say that I will stop writing, I feel it is important to continue to post articles daily, to try to retain the skills required to do it for as long as possible.

I will continue to advocate through my work with various organisations and to challenge the negative aspects of Dementia.


On Monday, I was at Neurology and had an MMSE which showed my score had reduced by 3, although subjective and not huge in the scheme of things, but seemingly confirming that things have moved on.

I have been having hallucinations caused by geometric patterns, where the patterns or stripes move,

Increasingly foggy head,

Tiredness and fatigue,

Unable to focus on tasks,

Headaches,

Seeing rats and spiders,

Problems with balance,

Decreased sense of smell and taste,

Hyperacusis,

Problems typing on a keyboard, I may know what I want to type but my fingers do their own thing,

Recognising faces of people I have known,

Putting names to faces,

Problems reading,

Reaching for objects and missing them,

I have got lost in town several times recently,

Bumping into door frames,

The first night in my hotel room in Brussels in December, there was a full length mirror which I thought was a doorway to another room and as I walked past the mirror, I thought there was someone else in the room, I didn’t recognise it as a mirror to start with.

etc…


We are often criticised by professionals and carers for showing the positive side of living with Dementia when their experiences may be negative.

Well here I am showing that it is not all moonlight and roses.

I am not suffering, although there are days when I might suffer.

My Father showed me that even in the darker days, you can still be a fighter.

He fought Cancer for 27 years and I will fight Dementia for as long as I can.