This week has been tiring and at times busy, but it has also been a time of reflection.

A lot has happened and a lot has changed over the last five years or so.

But in many ways, nothing has changed.

The Mental Capacity (Amendment) Bill, the Long Term NHS Plan, The Green Paper on Health and Social Care all fall short on what is necessary to alleviate the concerns of people living with Dementia, other Disabilities and the United Nations.

The lack of post diagnosis support services and assessments from the point of a diagnosis is still lacking especially if you are under 65.

Equality of services is another issue that needs addressing as is the involvement of the LBGT and BAME communities in bringing about change, to better the lives of people living with Dementia, other disabilities and their care partners.

Removing stigma and ignorance of professionals and society as a whole.

Changing the narrative of the media to be more enabling rather than disabling.

Whether any of these can be achieved in my lifetime is unknown, as many things are still as they were 40 years ago.

Hopefully in another 40 years, society will look back in shame at the way people with Dementia and other disabilities are treated.

But that will be too late for many of us.


Petitions

Petition – The lack of provision of social care in the UK is leading to immense distress for all people affected by dementia and their care partners.

Petition – Pay Carers an allowance equivalent to a fulltime job at the National Living wage


Consultations

Consultation by the UK Ministry of Justice on the Mental Capacity (Amendment) Bill

Consultation – Learning disability and autism training for health and care staff


Videos

Peter Berry’s 85th Weekly YouTube Video

Stephen Tamblin’s 40th Weekly Facebook Video

You can also catch Stephen’s 7th YouTube video

BBC Video How to talk about disability without being awkward.


Poetry

This week I had a go at some poetry – see what you think

…What life’s really like, Living in Dementialand.


Blogs

So, there is a lot you can do to make it easier for your patients who live every day and every hour with their dementia to get the help, care and understanding they need and deserve in order to live as well as they can.

And remember: 25% of people with dementia only leave their homes once a month. There’s a good chance it will be you who they visit. Make it a good day for them.

George Rook’s blog titled Be A Dementia Friendly General Practice

Also:

“There is a growing movement of people with dementia with a new (or a louder) voice that is now seeking, rightly, to take ownership of research under the ‘nothing about us without us’ rallying call. Indeed, as my friend Paul, a member of York Minds and Voices, said several years ago now, ‘If you’re doing research about dementia and you don’t include people with dementia, then you’re wasting your bloody time’.”

Damian Murphy’s blog for Innovation in Dementias CIC titled Comfortable