The arrival of September has brought an Autumnal feel to the weather with its misted over car windows first thing in the morning.

After the relative calm of August, this month brings a pretty full diary of activity and no doubt I will hear the tone of concern in the voices of family “should he be doing so much” and “can someone with Dementia be able to do this” but I do not want to return to last years time spent sat indoors disengaged with life.

It is also World Alzheimer’s Month, with World Alzheimer’s Day on the 21st, an annual opportunity to raise awareness of Alzheimer’s, the people diagnosed with it, their carers/family, the UN Conventions including the CRPD.

It is a time to raise awareness that Dementia is an Umbrella term like Cancer and that Alzheimer’s is only one of over 100 forms of Dementia, as Melanoma is a type of Cancer.

It is also a time to raise awareness of bad practice and the abuse of our elders:

Elderly Alzheimer’s patient beaten at Arvada assisted living community; caregiver facing arrest

Care worker named after alleged assaults at aged care facility

and to campaign for a change from the medical model of healthcare to the social model through the Ban BPSD Campaign

Wednesday saw the Committee stage of The Mental Capacity Amendment Bill seeking to replace existing liberty safeguards for which there are concerns.

In their article  “Government must rethink flawed mental capacity reforms” Charity Today write

“NHS England’s policy Building the Right Support aims to reduce the numbers of people being detained in long-term inpatient hospital units; such hospitals’ efforts to move people out to community services is patchy, so giving these particular hospitals responsible body status for LPS is worrying”

In their article “Majority of practitioners opposed to key aspects of DoLS replacement proposals”, write

“The increased role for care home managers had already sparked concerns among professionals, about managers’ competence for the proposed responsibilities and risks they would face a conflict of interest by being responsible for safeguarding the rights of people deprived of liberty in the homes they run.”

With omission of some of the Law Commissions recommendations, a lack of debate on advocacy for the person in Parliament and concerns about conflict of interest, this bill appears to be more about saving money than an individuals rights.

Disability News Service published an article about concerns over the bill here


Today’s re-blog as part of World Alzheimer’s Month focuses on an Open Letter to Matt Hancock, UK Minister for Health and Social Care written by Wendy Mitchell.

In it Wendy talks in part about her diagnosis experience and healthcare moving from the medical model to the social model.

If you read Wendy’s article, please read the comments at the end, they contain comments on the experiences of ordinary people coping with Dementia.

A Letter to Those in Power

Finally, Peter Berry’s 62nd weekly video is now available on YouTube .