This weekend has been a challenging one for me.
On Friday I put some eggs on to boil, yes reader, I know I’m not supposed to touch the cooker, but was trying to help.
I went to the shops to get some milk and when I got back my wife told me that some cardboard boxes were next to the cooker and had caught fire, luckily my wife noticed before it took hold.
Saturday morning, I woke up just after 5am and the fog of Dementia was waiting for me with avengeance.
I liken these times using Greg O’Brien’s analogy “On Pluto”, for me my body is on earth but my head is far away through the fog on Pluto and it would be 4 hours before I could venture downstairs.
My daily trip to the shops cancelled as the challenges would be too great, later I turned off Social Media and the TV and waited in silence as my head made its slow journey back from Pluto.
This morning the fog of Dementia waited for me again but I was able to rouse myself after a couple of hours.
Over the weekend I have remembered how relaxed I had been last week in Birmingham at the Dementia Diaries Meet Up last week and I am now going to cancel all my Dementia based activities this week in favour of spending some family and me time.
My blog will continue, I already have some articles ready to publish as I cannot always find the words to write them daily.
Dementia will still be there in a weeks time and there will still be many battles and abuses to be fought but for now my own personal battle will come first.
If you are interested in Greg’s book it is called “On Pluto: Inside the Mind of Alzheimer’s”
To finish with, a couple of quotes from my favourite album:
“Every year is getting shorter.
Never seem to find the time,
Plans that either come to naught,
Or half a page of scribbled lines.
Hanging on in quiet desperation,
Is the English way.
The time is gone.
The song is over.
Thought I’d something more to say..”
“You lock the door and throw away the key
There’s someone in my head but it’s not me.
And if the cloud bursts thunder in your ear.
You shout and no one seems to hear.
And if the band you’re in starts playing different tunes.
I’ll see you on the Dark Side of the Moon..”
Posted by “Pink Floyd – Steve” on Twitter