I found out about my 6th research from a post on Facebook and I emailed Mary O’Malley at the University of Northampton to find out more.
“The Angela Project is dedicated to Angela who was diagnosed with dementia at 51 years of age. She had symptoms for 3 years before getting a confirmed diagnosis. Many other people experience delays like Angela.
Their aim is to improve diagnosis and post-diagnostic support for younger people living with dementia and their caregivers.”
Mary emailed me the usual consent form and information and I emailed the form back.
That done, Mary emailed me my participant number and a link to the questionaire, if I couldn’t use a computer, I could have done it by post.
The questionnaire, asking about my experiences from going to my GP to my diagnosis, were easy to understand and it took no more than 20 minutes.
There are 2 more questionnaires to do over the next few months, then it is done.
This is another example of how simple it is to take part in research, remember reader, the more we do the faster change will come.