So You Think You Have Disability Rights in the UK – Think Again

Well reader, you may have heard of the United Nations Human Rights Convention and the Convention on the Rights of Persons with Disabilities. You may of also heard of the UK Disability Discrimination Act and the UK Equality Act.

You may be surprised to learn reader, that none of these are not fully enforced in the UK, so lets have a look at what has been happening in recently.

Ageism widespread in UK, study finds

Ageism Hurts and it’s Discrimination

Need to use a wheelchair for a Benefits Assessment

Want to appeal a Benefits decision

Need to get a train:

TransPennine Express accused of ripping up disability discrimination legislation

Rail staff told not to help disabled passengers board if it makes train late

Or Perhaps fly:

Four airports found to be failing disabled passengers

Need to get a disability pass and not on benefits or have certain conditions

RailCardBlue Badge, CEA Card,

The new rules announced in January 2018, to make Dementia and Autism eligible for a Blue Badge have yet to be implemented in my area “but are out to discussion”

Need Post-Diagnosis Support, Services and Funding:

The Post Code Lottery

A third of people with dementia in England ‘not receiving full care’

Councils tighten reins on personalised care

Need Assisted Living, say goodbye to money and property

Mum has dementia and now Dad’s dead she will have to sell her home. Why?

Paying for Social Care. There are ways out of our care crisis, if only May had the guts to pick one,

Have Behavioural Issues, Hello BPSD:

Seniors In Pain Being Inappropriately Restrained

Antipsychotic drugs harm older people, let’s reduce their use

At the end We’re told we are a burden. No wonder disabled people fear assisted suicide

Do We Have A Right To A ‘Good Death’?,

Food Poverty

Doctors ordered to recognise the ‘human value’ of patients with dementia as part of a major overhaul of care

Disabled people losing their benefits a ‘scandal’ say campaigners

Why won’t ministers come clean about the impact of cuts on disabled people?

Thousands of disabled people failed by government’s ‘culture of indifference’, report finds

TUC Disabled Workers’ Conference: Government ‘has created hostile environment for disabled people’

Thousands of people with learning disabilities are “trapped” in institutional care and are having their “human rights routinely ignored”, MPs have heard.

Here’s why Human Rights in Healthcare Are Needed More Than Ever

UN denounces British government for failing to protect disabled peoples’ rights

Liam Fox’s Brexit trade bill set to crush disabled people

Talking to persons with disabilities you hear about how they lose support because they can speak at conferences, assessed as fit for work, because they can use social media and the other day someone told me that on more than one occasion, bus drivers have told them to walk instead of catching the bus for one stop to the supermarket, even though they cannot walk that far.

Then there are the perceptions of disabilities, the drooling hunched over wheelchair bound, incapacitated persons with the wrinkly hands, Dementia only affects the old, the old and disabled are a drain on the young and many more discriminating, denigrating comments .

Then there is Disability abuse, the name calling and labelling. The worst for a person with Dementia is “You don’t look like you have Dementia”

There is a slow change but as with the EU Withdrawl Bill, not everything is for the better.

There is now the Inquiry into dementia and disability launched by APPG on Dementia which may be a response to the UN to investigate Tory record on poverty and human rights or may be the experiences of others and myself have made me cynical.

In closing reader, whether Governments and Healthcare systems like it or not, rights based care for persons with disabilities is here to stay.

Care should be inclusive, rights based, equal between chronic diseases, with post-diagnosis support care and funding for the person and their carer/family.

We all need access to these things at some point in our lives, we pay our taxes and in return it is the duty of all to provide the care that we all need. If you are diagnosed with the 3 main causes of death in this country and other diseases, you shouldn’t be left without care or have to jump through hoops to access it.

The history of the 20th Century tells us that all appropriate inclusive care and support, services and funding should be available automatically, from the point of diagnosis upholding our rights in the process so that we never return to those dark days of disability abuses.

 

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