Well reader, you may have heard of the United Nations Human Rights Convention and the Convention on the Rights of Persons with Disabilities. You may of also heard of the UK Disability Discrimination Act and the UK Equality Act.
You may be surprised to learn reader, that none of these are not fully enforced in the UK, so lets have a look at what has been happening in recently.
Need to use a wheelchair for a Benefits Assessment
Want to appeal a Benefits decision
Need to get a train:
Or Perhaps fly:
Need to get a disability pass and not on benefits or have certain conditions
The new rules announced in January 2018, to make Dementia and Autism eligible for a Blue Badge have yet to be implemented in my area “but are out to discussion”
Need Post-Diagnosis Support, Services and Funding:
Need Assisted Living, say goodbye to money and property
Have Behavioural Issues, Hello BPSD:
Talking to persons with disabilities you hear about how they lose support because they can speak at conferences, assessed as fit for work, because they can use social media and the other day someone told me that on more than one occasion, bus drivers have told them to walk instead of catching the bus for one stop to the supermarket, even though they cannot walk that far.
Then there are the perceptions of disabilities, the drooling hunched over wheelchair bound, incapacitated persons with the wrinkly hands, Dementia only affects the old, the old and disabled are a drain on the young and many more discriminating, denigrating comments .
Then there is Disability abuse, the name calling and labelling. The worst for a person with Dementia is “You don’t look like you have Dementia”
There is a slow change but as with the EU Withdrawl Bill, not everything is for the better.
There is now the Inquiry into dementia and disability launched by APPG on Dementia which may be a response to the UN to investigate Tory record on poverty and human rights or may be the experiences of others and myself have made me cynical.
In closing reader, whether Governments and Healthcare systems like it or not, rights based care for persons with disabilities is here to stay.
Care should be inclusive, rights based, equal between chronic diseases, with post-diagnosis support care and funding for the person and their carer/family.
We all need access to these things at some point in our lives, we pay our taxes and in return it is the duty of all to provide the care that we all need. If you are diagnosed with the 3 main causes of death in this country and other diseases, you shouldn’t be left without care or have to jump through hoops to access it.
The history of the 20th Century tells us that all appropriate inclusive care and support, services and funding should be available automatically, from the point of diagnosis upholding our rights in the process so that we never return to those dark days of disability abuses.