This article will be gradually updated as I learn more.
Along with the move away from awareness to action by the Alzheimer’s Society, there seems to be more emphasis on a rights based approach to Dementia care.
As well as the Human Rights convention, the United Nations has the Convention on the Rights of Persons with Disabilities (CRPD)
The WHO has also published a booklet about Ensuring a Human Rights Approach for People Living with Dementia.
Dementia Alliance International have published a booklet The Rights of People Living With Dementia: From Rhetoric to Reality.
Naturally. there are concerns about a rights based system:
The UN CRPD Committee raised concerns in 2017, which can be downloaded here, about how the UK upholds rights and the UK Government response is here.
The Journal of Medical Ethics, published an article debating the implementation of Article 12 of the CRPD.
Examples where rights are not respected could include
Alzheimer’s Disease International responds to France’s Ministry of Health and Solidarity’s announcement to cease reimbursement of four anti-Alzheimer drugs.
The unfair system of UK Prescription Charges,
You’ll find some other useful information about rights and people with dementia, including a practical guide to how to use your rights here http://www.innovationsindementia.org.uk/what-we-do/rights/
You’ll also find the Alzheimers Society’s report to the United Nations Convention here https://blog.alzheimers.org.uk/campaigns/dementia-rights-at-the-un/
Thank you Steve