“The Twitter Use of People Living with Dementia” Study – Part 1

Recently, saw me take part in my 5th Dementia Research Study.

Catherine Talbot, a PhD student from the University of Exeter Medical School, travelled up from Exeter to interview me for “The Twitter Use of People Living with Dementia” Study.

The Study takes a year, there will be 2 further interviews, one in six months and a final interview in twelve months time.

Catherine had already emailed me the consent form and questionnaires and an assessment of functional ability, which I had completed and posted back to her and she asked if she could record the interview.

We started with a Cognitive Assessment and then we talked for about 30 minutes about how and why I came to use Twitter. We then talked about the challenges (Trolls) and the benefits of using Twitter after a diagnosis of Dementia.

Some of the benefits are the support of peers who have been through a diagnosis of Dementia and organisations/charities that provide information and support. It can aslo be easier than talking face to face, especially on the foggy days, as I can type something out, change all the typos, something which is happening more and more, before posting.

The second part, again 30 minutes, was talking about some of my Twitter posts and retweets which Catherine had printed off. That done, it was time for Catherine to go and travel back to Exeter.

This was another example of how simple, taking part in research can be and another example of a simple activity we can benefit from by being engaged and may benefit future generations.


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