This page bring together the articles that form the first 4 years of my own personal story from around January 2014 when I first started to notice changes in my cognitive abilities, through my diagnosis to the end of 2017:
As you will have read, they were challenging times, not helped by a system severely lacking in funding, support, rehabilitation, services and a lack of will to uphold our rights.
You may say reader, well that’s just his experience, the exception not the rule.
I can confirm that my experiences are not unique, that the more people I talk to the more common my experiences are, not just in the UK but worldwide.
This has led me to try to advocate for change in my own small way and to raise awareness of the challenges that a diagnosis of Dementia brings.
Whilst I try to show that there is a life to live after after a younger/earlier diagnosis, to offset the stigma of the media perceptions of Dementia, it is in no way intended to belittle the experiences of professionals or care partners who generally have a negative experience of Dementia in the end stage or Palliative stage as I refer to it.
It is because of my experiences of that stigma from the point of my diagnosis that I write these articles to hopefully enable some who follow, receiving their diagnosis.
My experiences over the last 4 years reader, were generally negative and are linked elow in follow up articles:
but as you will see, things changed in 2018.